Concerned mother of 9 week old with PWS - Vascular Birthmarks Foundation Forum
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Old 10-16-2009, 05:17 AM
RLynnWray RLynnWray is offline
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Join Date: Oct 2009
Posts: 1
Smile Concerned mother of 9 week old with PWS

My daughter was born with a port wine stain on the left side of her face and is now just 9 weeks old. Our pediatrician suggested we meet with a pediatric dermatologist to discuss her treatment. I'm afraid I'm going to be an emotional mess and will draw a blank on questions during our visit. For those of you who have already had these visits, is there anything in particular I should be asking about? My concerns include glaucoma, Sturge-Weber Syndrome, hemangiomas, etc.

Any advice would be welcomed.

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