PWS on back and leg-infant - Vascular Birthmarks Foundation Forum
  Vascular Birthmarks Foundation Hemangiomas  |  Port Wine Stains  |  Vascular Malformations  
VBF logo
1994 - 2015
Celebrating 21 years with
80,000 networked into treatment

Dr. Linda Rozell-Shannon, PhD President and Founder

Donate to VBF    Shop VBF Products

Go Back   Vascular Birthmarks Foundation Forum > Port Wine Stain Help > Port Wine Stain Help and Resources

Thread Tools Display Modes
Prev Previous Post   Next Post Next
Old 01-20-2010, 06:38 PM
samsherman samsherman is offline
Junior Member
Join Date: Jan 2010
Posts: 8
Default PWS on back and leg-infant

Our almost 10 month old daughter has a PWS on her lower back and leg and I would really like to connect with others who may be in the same position. She has seen an orthopedist and had an ultra-sound which showed what they expected, a cppillary malformation. She will be having an MRI in the upcoming months and we will be seeing a vascular specialty clinic. We are now concerned that this may develop into KTS, something we know may not be evident until she is a bit older. Any feedback on what we might expect and how others have managed would be greatly appreciated!
Thank you!
Reply With Quote

Thread Tools
Display Modes

Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

vB code is On
Smilies are On
[IMG] code is On
HTML code is Off
Forum Jump