Hi New Person here - Vascular Birthmarks Foundation Forum
  Vascular Birthmarks Foundation Hemangiomas  |  Port Wine Stains  |  Vascular Malformations  
VBF logo
1994 - 2015
Celebrating 21 years with
80,000 networked into treatment

Dr. Linda Rozell-Shannon, PhD President and Founder

Donate to VBF    Shop VBF Products

Go Back   Vascular Birthmarks Foundation Forum > Hemangioma Help > CMTC

Thread Tools Display Modes
Prev Previous Post   Next Post Next
Old 08-04-2010, 03:01 PM
sara christina sara christina is offline
Junior Member
Join Date: Aug 2010
Posts: 3
Default Hi New Person here

Hi Everyone,

I was recommended to this site from a friend whose DD has Hemangioma and I've talked with her about my DS's possible CMTC. My son is almost 18 mos and since birth I've noticed the splotchy, marbled appearance on his skin. His complexion is very fair (like my husband, where mine is olive) so I just thought it was b/c of that.

My SIL also has very fair, skin similar to my son with the occasional splotches, esp when she's cold. She ALSO had atrophy in one leg as a child, spent time with the March of Dimes, etc. I'll be quizzing her more about it this weekend...

This all got me thinking, Henry- my son- was average (50% at birth for height and weight with a larger head circumference 70%). Now he's dropped off the chart in height (<5%) and very low for weight (10-15%) but his head is still 85%. (DH and I are both very AVERAGE sized. His spotchiness is on both legs, very evenly distributed and very, very light on his arms. None on his chest/back trunk.

His vision is fine, hearing selective (as most 18mos are!), verbal skills good. He's active, physical, happy, playful, loving and connected.

Am I over thinking this? Am I a hypochondraic? Is it possible he does have CMTC? We go for his 18 mo Ckup in 2 weeks and I want to be prepared w/ questions.

Can I PIP here? Or attach a link similar to his symptoms?

Thanks for listening everyone.
Reply With Quote

Thread Tools
Display Modes

Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

vB code is On
Smilies are On
[IMG] code is On
HTML code is Off
Forum Jump