Does anyone know much about Tufted Angioma and KHE? - Vascular Birthmarks Foundation Forum
  Vascular Birthmarks Foundation Hemangiomas  |  Port Wine Stains  |  Vascular Malformations  
VBF logo
1994 - 2015
Celebrating 21 years with
80,000 networked into treatment

Dr. Linda Rozell-Shannon, PhD President and Founder

Donate to VBF    Shop VBF Products

Go Back   Vascular Birthmarks Foundation Forum > Hemangioma Help > Help and Resources for Hemangiomas

Thread Tools Display Modes
Prev Previous Post   Next Post Next
Old 08-20-2010, 07:40 PM
alexisuk alexisuk is offline
Junior Member
Join Date: Aug 2010
Posts: 3

hi there, we first attended great ormond street in march this year, bloods and an ultrasound were done then, the doctor said the bloods indicated that it may be a tufted angioma but his clotting levels were fine! the tufted angioma was confirmed by an incision biopsy in July, but I haven't got another appointment until October, the doctor offered no treatment or anything for pain control, as my son is so young she said it's hard to tell if he is in pain! but if I catch the angioma when dressing him or picking him up he gets very distressed.
I feel very isolated and feel guilty for worrying as doctor said it could have been much worse. I can't find anyone in this country to speak to and cannot afford to go abroad.

I really don't know anything about the implications of the tufted angioma but was lead to understand that he doesn't have the other complication that goes with this???
Reply With Quote

Thread Tools
Display Modes

Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

vB code is On
Smilies are On
[IMG] code is On
HTML code is Off
Forum Jump