Recommendation for check list-when finding THE right doctor for LM (macro) - Vascular Birthmarks Foundation Forum
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Old 11-01-2010, 03:16 AM
Aolmstead Aolmstead is offline
Join Date: Mar 2010
Posts: 31
Default Recommendation for check list-when finding THE right doctor for LM (macro)

Is there a checklist we can refer to when finding a specialist to treat lyphantic malformations? What are the 'must have' experiences when finding one?

Through research, it looks like Dr. Levitin or Dr. Shiels would be my choice for my daughters (16 mth) LM macro on left neck, but our HMO does NOT allow 'out of network' and wants us to seek local medical resources FIRST.

We do have an interventional radiologist in Las Vegas (highly recommended by our ENT dr. who did the sclerotherapy on her neck) but needed to ask him 'specific' key questions with his approach on LM.

Can anyone tell me what I should be asking.....(other than the obvious ie. doctors experience, how many LM cases they've treated etc..)

Any advice?
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