Invisible AVM in Leg - Vascular Birthmarks Foundation Forum
  Vascular Birthmarks Foundation Hemangiomas  |  Port Wine Stains  |  Vascular Malformations  
VBF logo
1994 - 2015
Celebrating 21 years with
80,000 networked into treatment

Dr. Linda Rozell-Shannon, PhD President and Founder

Donate to VBF    Shop VBF Products

Go Back   Vascular Birthmarks Foundation Forum > AVM Help > AVM Help and Resources

Thread Tools Display Modes
Prev Previous Post   Next Post Next
Old 01-03-2011, 08:16 AM
heatherfife heatherfife is offline
Junior Member
Join Date: Sep 2010
Posts: 1
Post Invisible AVM in Leg

My otherwise healthy eight year-old daughter suddenly developed a contracture in her right leg. The only sypmtom she had was that she could not put her heel flat on the floor and limped terribly when she walked. There was no swelling or discoloration on any part of her leg. The pediatrician and the orthopedist were at a loss, neither had any idea what was causing this. I did research online and by searching for "unilateral toe walking" found a paper that was written about a 21 year-old woman with these same sypmtoms. She had been diagnosed with a hemangioma (now we know that hemangioma involute and with her advanced age, it was technically an AVM or malformation). After taking this information to her doctor, I was able to get an MRI and after meeting with specialists, a diagnosis of AVM or COLA (congenital lipovascular anomaly, which includes fatty tissue).

I will post more once we get our treatment plan and even more once we get the treatments. At this point I understand that if it is an AVM, then sclerotherapy is an option...if it is a COLA, then sclerotherapy or embolization is not recommended and can worsten the problem.

I just wanted to put this information out there in case someone else knows of something like this happening to someone.
Reply With Quote

Thread Tools
Display Modes

Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

vB code is On
Smilies are On
[IMG] code is On
HTML code is Off
Forum Jump