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Old 11-23-2009, 05:40 AM
nickbar nickbar is offline
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Join Date: Aug 2003
Location: Pacific Northwest
Posts: 1,054

Are you seeing any more growth now at 6 months old? Has he had any type of treatment for the hemangiomas? Are you able to describe them, size etc. and or post pictures? I may be able to help you get a specialist near you that can give you an opinion on surgery. I would also recommend emailing Dr. Greg Levitin from ask the expert list on surgical options for hemangiomas.

Corinne Barinaga
VBF Director of Family Services
vbfadvocate @ live. com (no spaces)
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Old 11-24-2009, 07:39 PM
Miepsh Miepsh is offline
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Join Date: Sep 2009
Posts: 18

My daughter has such a fast growing H, that at one point after already waiting for quite some time, we were seriously asked by a specialist to start her on Propranolol, which I hate doing and I would love to be able to wait this thing out. But then again, it is on her head (7 by 5cm and 1,5cm high) and there is a lot of dark hair to help cover it a bit and I don't know what it feels like to have a child with an H near the eye or on the face generelly, where people notice it quickly. So go with your Mum instincts, and find a specialist you trust, then listen to him.
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Old 12-01-2009, 06:30 PM
momof3inpa2009 momof3inpa2009 is offline
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Join Date: Dec 2009
Location: PA USA
Posts: 112

I am going thru the same thing, my dd has one on her eyebrow, it's a canverous (deep) one...I don't know what to do because her doctor says "wait it out"
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Old 01-31-2011, 08:49 PM
lisa318 lisa318 is offline
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Join Date: Jan 2011
Posts: 3

Originally Posted by AddisonsMom View Post
Thanks and I appreciate your reply, but since my daughter has medicaid (and we most definetly canNOT afford any procedures out of pocket) I dont know what we can do...? Her pedi has been telling us over and over to just wait it out...
I have a same experience with u, did u give a try to get any treatment? does medicaid will cover the treatment?? because my daughter has a hemangioma on her left side eyes and her pedi also telling us to just "wait and see" and i hate it.
My daughter also has medicaid and i also cannot afford any cost out of pocket.
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Old 02-01-2011, 04:35 AM
smurph smurph is offline
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Join Date: Jan 2007
Posts: 459

My daughter was on medicaid when she had treatment and it was covered so I think it is possible.
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