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Old 06-12-2011, 03:59 AM
emilygallese emilygallese is offline
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Join Date: May 2011
Posts: 8
Default went to boston childrens hospital....

We recently took our 3 1/2 month old to boston childrens hospital after joining this site (which has been so helpful) and saw dr. greene who was really great and started our daughter on prednisone (sp?) already only a week later her H. looks less "angry" if you will. Any parents that have used steroids to inihibit growth that would comment on outcome would be great. dr greene did say she may need some surgery in the future to restore proper contour of her forehead, but we would just wait and see. I will keep everyone updated on her tx and outcome, thanks to the parents that do the same, its so helpful. xoxoxox's to all the beautiful babies waiting to rid of their H.'s.
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