Sleep disturbance on propranolol - Vascular Birthmarks Foundation Forum
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Old 10-30-2011, 05:45 PM
Steph42984 Steph42984 is offline
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Join Date: May 2011
Posts: 3
Default Sleep disturbance on propranolol

Hi! My son (who is almost 8 months old) started on propranolol 2 weeks ago for multiple hemangiomas. He has upwards of 15 easily noticable ones, with tons of little ones all over, plus scattered ones on his brain. About a week ago, he has started waking several times in the middle of the night, and the last two nights, he woke up and was up for 3 hours and refused to go back to sleep!

We did just move to Louisiana from Hawaii, and were travelling quite a bit before we arrived, so his sleep patterns havent been able to get back to "normal" because of that. We just don't know if anyone else has had issues with the sleep disturbances, and if you did, how long did it last? These sleepless nights are getting to all of us!! I'm sorry if this doesn't make much sense...sleep deprivation and all of that
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Old 10-31-2011, 11:49 AM
missy missy is offline
Join Date: Apr 2006
Posts: 1,794

Hi and welcome!

I don't know the answer to that one, but others will be around soon! Just wanted to say hi,

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Old 11-05-2011, 05:47 PM
nickbar nickbar is offline
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Join Date: Aug 2003
Location: Pacific Northwest
Posts: 1,054

Sorry, i don't know about the sleep issues. How is propanonol working for you child?
Corinne Barinaga
VBF Director of Family Services
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Old 11-08-2011, 02:07 AM
spaatz1329 spaatz1329 is offline
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Join Date: Jun 2011
Posts: 27

My daughter has been on propranolol since August. I have not ever noticed sleep disturbances, although my derm said it can cause night terrors!

Ellie- born 5/24/11
Forehead Hemangioma, Finger Tip Hemangioma
Large Diaper Area Hemangioma w/ PELVIS Syndrome
Tethered Spinal Cord, Bladder Exstrophy/Cloacal Anomoly
Diagnosed with Rhabdomyosarcoma 3/19 begins 46 week Chemotherapy treatment 4/9
On Propanol 1.4mL/3 times daily
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Old 11-19-2011, 07:33 PM
Ahope2011 Ahope2011 is offline
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Join Date: Nov 2011
Posts: 2

my daughter had been on it for a month and she never sleeps. Hers is located on her nose and is the size of a golf ball so i dont know if it's because she has a really hard time breathing or if it because of the drug how often does ur son get the medicine??
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Old 11-19-2011, 11:48 PM
sporty sporty is offline
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Join Date: Nov 2011
Posts: 8

I was on it for a short time when I was pregnant and had insomnia. It is one of the side effects. It is strange because you are just not tired at all, its not like you cant sleep and are fatigued. When I got up to pee during the night (pregnant with twins, so was often) I had a hell of a time trying to fall back to sleep.
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