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Old 11-19-2011, 07:40 PM
Ahope2011 Ahope2011 is offline
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Join Date: Nov 2011
Posts: 2
Default Hemangioma and Treatments..

My daughter was born july 12, 2011, she is my first baby so i have never been thro this before. She was born with it on her nose at first it was a little pink spot but a few days after she was born it started turn dark red and growing like crazy. now she is 4 months old and it is the size of a golf ball, it blocks her nostrils and she has a hard time eating and sleeping because she struggles to breath. It has started to split and bleed like crazy no matter how hard we try to stop it. I had to fight to get her to see a specialist and they put her on propranonal and steroids. the steroids seem to shrink it a bit but the said they could only keep her on it for a week cause she was so small and would cause her issues. She has been on the propranonal for about a month and there has been no change at all they wont operate or do laser they just keep saying to wait for it to start working. I am frustrated and dont know where to go from her i am tired of seeing my baby in pain and i fight and fight for someone to help her and all they say is i have to wait..
i just want to know where do i go from here and how lond did it take for this medicine to start working. please help!!
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Old 11-20-2011, 12:38 AM
missy missy is offline
Join Date: Apr 2006
Posts: 1,794

Hi and welcome!

Sorry you've had such a tough time. Where are you located? My best advice right now would be to get in touch with one of our experts at

Other parents will be in soon to give you their experiences with propanolol.

Hang in there!

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Old 11-27-2011, 10:12 PM
spaatz1329 spaatz1329 is offline
Junior Member
Join Date: Jun 2011
Posts: 27

It took about 8 weeks to really start to notice a difference, but then it really changed fast. Hang in there!
Ellie- born 5/24/11
Forehead Hemangioma, Finger Tip Hemangioma
Large Diaper Area Hemangioma w/ PELVIS Syndrome
Tethered Spinal Cord, Bladder Exstrophy/Cloacal Anomoly
Diagnosed with Rhabdomyosarcoma 3/19 begins 46 week Chemotherapy treatment 4/9
On Propanol 1.4mL/3 times daily
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Old 12-01-2011, 01:27 AM
nickbar nickbar is offline
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Join Date: Aug 2003
Location: Pacific Northwest
Posts: 1,054

How are things going? Any changes. Where are you located?
Corinne Barinaga
VBF Director of Family Services
vbfadvocate @ live. com (no spaces)
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