PWS on Genitalia? - Page 2 - Vascular Birthmarks Foundation Forum
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Old 10-19-2011, 01:15 PM
missy missy is offline
Join Date: Apr 2006
Posts: 1,794

Thank you so much for remembering to come back and give us an update. I'm so glad you're getting the best possible news. If anything unforeseen happens, do remember to come back by and let us know.

Interesting case, too. I've been around here more than a decade and can only remember one other case of PWS in that area, and that person had PWS over 90% of his body.

Thanks again! I hate it when people leave me hangin'!

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Old 10-19-2011, 07:55 PM
erih erih is offline
Join Date: Nov 2008
Location: Illinois
Posts: 56

wow. I hope the dr's are right! And that the ultrasounds come back clear
The hope a dream and the wings to be free
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Old 01-06-2012, 11:18 AM
JaCkMarTIn JaCkMarTIn is offline
Junior Member
Join Date: Jan 2012
Posts: 5

I did not send him the photos, but am willing so I can get his professional opinion. He told me that the genitals are an unusual place for PWS and to get in to see a pediatric dermatologist. He also said it sounds like a hemangioma. Everything I have read and seen has made me think PWS.
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Old 01-10-2012, 04:35 AM
nickbar nickbar is offline
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Join Date: Aug 2003
Location: Pacific Northwest
Posts: 1,054

Likely not hemangioma since you still have the stain. Have you talked with Dr. Nelson? I would encourage you to do so.
Corinne Barinaga
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vbfadvocate @ live. com (no spaces)
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