My HUGE birthmark; HELP. - Page 2 - Vascular Birthmarks Foundation Forum
  Vascular Birthmarks Foundation Hemangiomas  |  Port Wine Stains  |  Vascular Malformations  
VBF logo
1994 - 2015
Celebrating 21 years with
80,000 networked into treatment

Dr. Linda Rozell-Shannon, PhD President and Founder

Donate to VBF    Shop VBF Products

Go Back   Vascular Birthmarks Foundation Forum > Individuals Living with Birthmarks > Living with a birthmark - my story

Thread Tools Display Modes
Old 10-16-2009, 01:50 AM
Cuety83 Cuety83 is offline
Junior Member
Join Date: Jan 2008
Location: Rhode Island
Posts: 11

I can relate to every person on here. I have KT syndrome on my entire right leg. I started to get made fun of when I was about 9 years old, but for some reason it did't bother me, I would just come back with a joke to them in school. As I became a teenager, I did cheerleading and I danced for 10years, never tried to cover it up, never felt embaressed,that was until about towards the end of 8th grade. Everyone at that point already knew that I had a "red leg" with scars, but for some reason, I wanted to hide it. I don't know why we start feeling conscious, Im 26 now and sometimes I have dreams where Im in public in a bathing suit and everyone is staring at me! I am definatly more open about it now, but it has only come during the past couple of years. This summer, I wore a bathing suit on the beach and was like, who cares?? 1. I'll never see them again anyway 2. why am I gonna worry about what other people think. This gorgeous young guy was even hitting on me!!! many years before, I would avoid going. Well I guess what I am trying to say is be yourself, enjoy life!!! I have realized that most people stare because they are curious, not to make fun. I tell people now, I even will show them, look what I have!!! Because I would rather tell them and show them then go out one day and them be in total shock that I am half "red". Life is too short for us to hide, to now enjoy what everyone else is doing. I will never deprive myself again. I have family and friends that love me and they are the only ones that I care about what they think, and believe me, I am not less of a person because of a "birthmark."
Enjoy life!!!!
Reply With Quote
Old 11-03-2009, 05:51 PM
RowdyBliss RowdyBliss is offline
Junior Member
Join Date: Jun 2009
Location: Delaware
Posts: 29

I've found that the people who look past my purple leg and look me in the eyes are the only people whose opinions I give a damn about.

I don't know if I'm too dumb to feel self-conscious about it, but I have never let my birthmark stop me from doing the things I love to do. I've almost developed an immunity towards people saying negative things to me - it's like I'm deaf to it or something. And I HAVE had the hurtful things said to me, like "what's wrong with your leg?" Um, pardon me, nothing is wrong with any part of me, thank you very much! This is the way G_d made me, and G_d doesn't make junk. I mean, I'm not in love with my birthmark, certainly - but I don't hate it. It's a part of who I am. I am not flawed. It's just how I am. Everyone's got something that sets them apart; this is my "something." Just because it's rare doesn't mean it's bad, or ugly.

The only time I feel self-conscious about wearing a bathing suit is when I've retained water and am bloated!

If people want to stare at me when I wear shorts, I'll tell them I just got this really b*tchin' tattoo on my leg and I need to give it air.

There is no way I'm not going to wear my cute little black dress when I go salsa dancing every week. And guys - a good many, not bragging! - dance with me because I happen to be someone who can tear up the floor!

And there is no way I'm going to stop doing theatre and pursuing acting. Thousands of people look at my birthmark when I'm on stage, and I never let it upstage my performances.

To those who are self-conscious - I know it's hard. I know how awful and isolating it can feel, but you are not alone. I think the key is first deciding to not let your birthmark dictate your birthright - that is, the things you were born to love and achieve - and then making small changes, tiny changes in the way you live. Tiny changes over time turn into big results.

G_d bless ALL of us.
With all thy getting, get knowledge.

Come visit my blog:
Reply With Quote
Old 01-28-2011, 01:58 AM
lucy hughes lucy hughes is offline
Junior Member
Join Date: Jan 2011
Posts: 1
Smile I thought I was alone!

Hello, I'm new to this site, but very pleased I joined it. I didn't even know there was a place that I could talk about my birthmark on, so I'm so happy. I've got a birthmark that starts from the top left side of my back and then goes all the way down to my left hip and wraps round and goes down my left leg. I've been so shy about it for years, and have always covered it up in the summer. I do go swimming as i wear long shorts to hide it up and a t-shirt, but have only just got confident enough to do this.
I'm 36 years old and have just about started to except it, but it doesn't mean that I like it. I thought I was alone until tonight, when I stumbled across this site. It's great to know that there are others out there with huge birthmarks like mine. Thanks so much. I hope that people will reply to my message.

Lucy x
Reply With Quote
Old 01-28-2011, 01:05 PM
missy missy is offline
Join Date: Apr 2006
Posts: 1,794

Hi Lucy!

Welcome to our little corner of the world!

Have you ever had any treatment?

Reply With Quote
Old 03-22-2012, 09:16 PM
mia.c mia.c is offline
Junior Member
Join Date: Mar 2012
Posts: 1

Hi, i have a birthmark stretching from the top of my buttock spread over half my leg and reaching all the way to my toes, i hate it i am 22, never where skirts etc i cant stand it, can ayone help me?? x am i normal? is there anything i can do to improve it ? thanks
Reply With Quote
Old 03-23-2012, 02:10 AM
kaykay kaykay is offline
Senior Member
Join Date: May 2006
Posts: 233

what type of birthmark do you have ? i guess what type it is depends on what treatment is available. Do some research and contact the doctors on this website.

you hate your birthmark.(honest)
can't stand to wear skirts (me neither)
are you normal. sounds pretty much so to me !

my attitude with my birthmark is thats its there, nuthin i can do about it but suck it up. I can't cover it. All i can do is wake up in the morning and try to have a good day. It bothers me sometimes but i have really good days too when it doesn't and i forget. I try to focus on that. And, that i am a human being still not matter how i look
Reply With Quote

Thread Tools
Display Modes

Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

vB code is On
Smilies are On
[IMG] code is On
HTML code is Off
Forum Jump

Similar Threads
Thread Thread Starter Forum Replies Last Post
HELP-huge ugly birthmark lyssa Adults Living with Birthmarks 10 12-09-2014 04:46 PM
"Blood Clots" in birthmark STraff Port Wine Stain Help and Resources 3 07-09-2009 03:08 AM
Birthmark what a thing we live with Steve Living with a birthmark - my story 1 05-09-2009 06:19 AM
hello all kaykay Living with a birthmark - my story 2 05-26-2006 10:26 PM
Cure for Port Wine Birthmark Simin Port Wine Stain Help and Resources 6 12-13-2005 09:38 PM