Hormonal Birth Control/PWS - Vascular Birthmarks Foundation Forum
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Old 03-23-2012, 03:41 PM
RowdyBliss RowdyBliss is offline
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Join Date: Jun 2009
Location: Delaware
Posts: 29
Default Hormonal Birth Control/PWS

Hey gang! Been a while since I posted. A lot has happened.

First off - I'm getting married in June, to the guy I've been seeing for the past three years. Yay!

But this brings me, in a roundabout way, to my next point...

Just this past Monday, I went to my obgyn for my regular annual internal exam. Passed that with flying colors (good), but my doctor told me that she was no longer comfortable giving me hormonal birth control. She said that my PWS - which has darkened and become quite varicose since she last saw me (doctors who see us patients with huge PWSs seldom forget us!) - creates too much of a risk for clots in conjunction with hormonal birth control. I have been on some form of hormones for BC - pills, patch, and now Nuvaring - for 18+ years - and actually smoked during some of those years. I think I've been dodging a big, BIG bullet!!

Having to go off the hormones is okay news, really, because DFH and I are not planning on having children (at least not naturally - adoption is a very real possibility), so I'm going to go off the hormones and opt for sterilization.

But I'm still turning the whole clot thing around in my head... does anyone else know anything about hormones - either therapeutic or for birth control purposes - and its contraindications for folks with vascular abnormalities like PWSs? I seem to remember a story (maybe I read it here?) about someone whose affected leg was absolutely riddled with clots as the result of her pregnancy and the hormones that created, but when I did some poking around online, there wasn't much to read about it at that point.

Just curious to hear stories/anecdotes, as this seems to be a rather new standard.
With all thy getting, get knowledge.

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