PWS on leg and leg length discrepancy - Vascular Birthmarks Foundation Forum
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Old 06-06-2012, 02:39 AM
reenie252000 reenie252000 is offline
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Join Date: Jun 2012
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Default PWS on leg and leg length discrepancy

My ten year old son has a port wine stain from his left buttock down the back of his leg to his ankle. It is fairly light colored. As an infant/toddler he was followed at the Vascular Anomalies Clinic at Boston Children's. He had a slight leg length discrepancy that they recommended be monitored by the pediatrician, and it has remained slight for all these years.

He is now in a big growth spurt, and all of a sudden one of his shoulders is noticeably higher than the other. When I checked him out, I realized his PWS leg is now considerably longer than his other leg, which seems to be making his hip and shoulder higher than the other side.

I am taking him to the pediatrician next week and assume we will be sent back to Children's, but now I'm worried and wondering if anyone has been in a similar situation, and if so, what the outcome was? Thanks for any input!
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