Applying 4 disability - Vascular Birthmarks Foundation Forum
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Old 02-15-2013, 10:47 AM
kimrose kimrose is offline
Junior Member
Join Date: Jun 2012
Posts: 1
Question Applying 4 disability

I live in Michigan,USA. S-W-F-54yrs old. I've been a cosmologists for 20 yrs.
When I was a child I suffered many seizures,one of which tore muscles in both eyes,
After many surgeries &glasses with a patch on one side(to strengthen weaker side),
I managed to graduate. I started getting migraines an adult,some lasted 3-5 days
.I missed out on a lot of planned ventures,also,couldn't be dependable. I managed
to work in many salons. But have worked in my home only,for the last 4 yrs. My neurologist said my brain has "leisions" whatever that means. My problems ate too
Many to list. So I've applied without an attorney,denied both times. My case never
Even was put in front of a judge. It took the fight out of me & my condition has gotten
worse. It's been well past the time period to appeal it. I needed a rest from focusing on
my health. I'm at a loss of what I should do! I'm having a hard time finding an attorney.
They put commercials on t.v., but, lie about their services. No one will represent me!
I didn't want one in the first place,can't afford to give a slice of what little ill end
up with. Disabilities r real. Has many. Now I need others who r like me to give me
any info on what to do.....appreciate all your help & time. Kim Rose

Last edited by kimrose : 02-15-2013 at 10:54 AM. Reason: p.s. sturge weber syndrome
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Old 02-17-2013, 07:50 PM
smurph smurph is offline
Senior Member
Join Date: Jan 2007
Posts: 459

Hi Kim,
I was looking at some of the resources here on this site for people with Sturge Weber Syndrome. This support group was listed:

Perhaps that group would be helpful to you. Most people on this forum are dealing with hemangiomas so you might not get too many responses about your specific need. But maybe others on the Sturge Weber community will have had some similar experiences that would be helpful to you. Good luck!
VBF Hemangioma Forum Moderator
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Old 02-23-2013, 12:36 PM
nuten nuten is offline
Junior Member
Join Date: Feb 2013
Posts: 1

I needed a rest from focusing on
my health.
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