Advice about hemangioma on lip - Vascular Birthmarks Foundation Forum
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Old 02-25-2013, 06:55 PM
amiabledwarf amiabledwarf is offline
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Join Date: Feb 2013
Posts: 3
Unhappy Advice about hemangioma on lip

Hi. I have recently come across this forum when doing some research about hemangiomas. Although I realise it is a US based site there is nothing similar in the UK and I really need some advice.

My daughter Teigan is 5 weeks old today. She was born full term and is a perfectly healthy little girl. However when she was a couple of weeks old we noticed that she had developed a small red mark on her lower lip. At first we thought it was a feeding blister but when it started growing very quickly we soon realised that it was a birthmark.

Due to it's position we are very concerned that it might grow very large and cause problems with feeding or become ulcerated and painful.

We have just been to see our doctor about it who quite honestly was very dismissive and just told us to leave it alone and try not to worry as it will eventually go away on it's own, albeit this could take years and it might become very large and unsightly before then. When I asked about possible treatment he basically told me that there was nothing that could be done and he will only refer us to a dermatologist if and when the hemangioma becomes ulcerated or Teigan struggles to feed. I suggested propranolol and he had not even heard of it!

I am not particularly happy with the advice we've been given. After reading this forum it is clear that early intervention can be very helpful. I know that Teigan's hemangioma is small now but it won't be like this in a few months and I don't want to ignore it and then wish I had done more further down the line.

Has anyone got any advice for what I should do? I have uploaded some pics to show what it is like currently. Thanks in advance.

'A concerned dad'
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Last edited by amiabledwarf : 02-25-2013 at 07:11 PM. Reason: upload photos
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