Hello, We live in London and our 2.5 year old son also has a microcystic lymphangioma of the upper lip that's under the skin - looks like a lump. I would appreciate to get in touch with parents to find out about possible treatments. We are currently under GOSH..but keep waiting for a decision to be made - sclerotherapy or surgery..sclerotherapy is not very successful with microcystic lymphangiomas..recently the lump is bruised and my son seems to be in pain...especially at night..i don't know what to do..I would love to get in touch with people with similar problems to find out more. Thanks
Last edited by mundo.kot : 10-13-2013 at 08:39 AM.