Lymphangioma of the leg - Page 3 - Vascular Birthmarks Foundation Forum
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Go Back   Vascular Birthmarks Foundation Forum > Hemangioma Help > Lymphatic Malformations (also known as cystic hygroma and lymphangioma)

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Old 10-22-2013, 05:16 AM
mahisehar mahisehar is offline
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Join Date: Oct 2013
Posts: 1

I have a 2 1/2 year old that was born with both macrocysts and microcysts around his right ear and neck. Recently, they have grown causing some minor issues. We are being told that he will have to undergo sclerotherapy or surgery. Can anyone give me the pros and cons for both if you have experienced either for your little one? My husband and I are thinking surgery so our son only has to go through one procedure and can be a done deal for a while. Has anyone opted for the surgery? If so, how did your little one deal with a long, extensive surgery like this? Thank you all.
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Old 03-29-2014, 09:04 PM
Lwinston Lwinston is offline
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Join Date: Mar 2014
Posts: 1
Default My Lymphangioma

Hello my name is Lisa I was diagnosed almost 3 years ago with having a Lymphangioma in my left pelvis groin and thigh. I am 23 years old and I have had 3 scalerotheropies done on this area but nothing is helping. The pain continues to get worse because my vascular tumor is wrapped around my femoral nerve and artery. Is there anyone on here who knows where I can find a great surgeons who will help me cut this out of my body.
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Old 03-30-2014, 02:28 PM
missy missy is offline
Join Date: Apr 2006
Posts: 1,794

Hi and welcome

Go to and get in touch with Dr. Levitin. If he can't help you, he will recommend someone who can.

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Old 04-02-2015, 03:02 AM
Farrenmataele Farrenmataele is offline
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Join Date: Mar 2015
Posts: 1

Originally Posted by jmills View Post
My daughter has an LM on her neck and is being treated by Dr. Shiels in Ohio.
I am pretty sure he treats and has experience with extremeties. He may be able to help. My research that I did a year ago convinced me that Dr. Shiels has the highest documented success rate that is peer reviewed, of anyone else I could find and LM's are one of his specialties. Click this link to read about his work,
My daughter at the age of 2 1/2 had a rapidly growing lump appear on her leg just below her knee. It was colored like a bruse but I would say with in 2 weeks it went from no lump to a golf ball sized lump. We have no family history of cyst or lymphangoma. We have kaiser and we were able to see an oncologist right away. After X-rays and ultra sounds the doctor was able to see that the lump was a mass. They decided to remove it and biopsy it. We were terrified that it was some type of cancer. Such a horrible and helpless feeling of not knowing. The results came back that it was a cyst or lymphatic malformation or lymphangoma.

The harder part was after surgery. My daughters leg kept filling with fluid and would not heal she had to have two more surgeries to drain her leg and pin the top lair of skin to the muscle. Her body kept over purducing fluid. She had a drain in for over 6 weeks. It wasn't until I bought here a compression sleeve that was really right that her leg stopped making fluid and finally healed together.

We were told by the doctor that any trama to that leg in the future could cause another mass to grow. We have always monitored her and figured she would be ok. Everything we read said that most causes are see by the age 2 and are rarly seen after that age. She is now 7 and resently had a big fall on her scooter which left her with a big bruse and scrape on her leg. Two weeks after that I noticed a lump on her shin and it seemed to be growing. I had taken her in to the doctor and now have a set of ex rays and ultra sounds to do. I hope it is just a bruses bone from her fall an nothing more.

I haven't been able to find much info on this lymphangoma thing online regarding the leg or in children not having to do with the face. Nothing to answer the why questions I have

Last edited by Farrenmataele : 04-02-2015 at 03:20 AM. Reason: Miss spelling
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