3 month old with lymphangioma, venous malformations, and port wine - Vascular Birthmarks Foundation Forum
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Go Back   Vascular Birthmarks Foundation Forum > Hemangioma Help > Lymphatic Malformations (also known as cystic hygroma and lymphangioma)

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Old 01-11-2014, 03:13 AM
WillowsMama WillowsMama is offline
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Join Date: Dec 2013
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Default 3 month old with lymphangioma, venous malformations, and port wine

We are dealing with slow responses to her growing lymphangiomas/ pain. We live in NC but are willing to go elsewhere to get her help. Anyone able to offer a recommendation from personal experience?
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Old 01-11-2014, 03:34 PM
missy missy is offline
Join Date: Apr 2006
Posts: 1,794

Hi and welcome!

Where in NC have you tried already? I think there is a good vascular anomalies group at Duke.

Try writing Dr. Levitin at http://birthmark.org/experts.php I know he had a practice in Greensboro at one point, so he might know who to tell you to call. Otherwise, I would try to see him, especially if you are willing to travel.

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