30 Years Old, AVMs on Face - Vascular Birthmarks Foundation Forum
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Old 03-13-2005, 10:03 PM
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Default 30 Years Old, AVMs on Face

Has there been any success treating AVMs on the face?* I have seen six surgeons at Emory this year and they think I should leave it alone.* In 96 it was misdiagnosed and excised form my lip.* In 97 they tried lasers on my nose.* Two weeks later I was on the verge of bleeding to death when it ruptured.* In 98 I went to Emory and they embolized it and excised it the next day.* I was uninsured from 99 to 02.* For about a year there, I thought I had been cured.* I have been watching the current one grow for several years now.* It is the largest one yet, the most painful, and it seems to grow faster and faster.* I feel like I have a time bomb strapped to my face.* I think it is effecting my heart, and at times my vision.* My sense of smell is rediculously sensitive.* I'm tired of people asking me what happened to my face.* I'm tired of living with it.* Anyone have any advice?*
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Old 03-14-2005, 12:20 AM
eprmo eprmo is offline
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Join Date: Dec 2003
Posts: 133
Default Re: 30 Years Old, AVMs on Face

I would suggest contacting this group of doctors. They are specialists in the field.

Dr. Wayne Yakes, Director
Dr. Nick Yee
Vascular Malformation Center
Interventional Radiologist
Swedish Medical Center
Englewood, CO 80110

Elissa Rifkin
VBF Developmental Specialist
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