Liver hemangioma / venus malformation? - Page 3 - Vascular Birthmarks Foundation Forum
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Old 01-09-2010, 06:01 PM
nickbar nickbar is offline
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Join Date: Aug 2003
Location: Pacific Northwest
Posts: 1,054

I would highly recommend contacting Dr. Robert Rosen on our website. What you have described is likely not a hemangioma. The term hemangioma is often used incorrectly to describe vascular lesions that are in fact malformations. Dr. Rosen can give you more information on options that might be available to help you. If you have any questions, please feel free to email me.
Corinne Barinaga
VBF Director of Family Services
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Old 09-22-2012, 05:38 PM
Jan Jan is offline
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Join Date: Sep 2012
Posts: 2

My daughter is expecting twin boys. At her 18 week 5 day ultrasound the neonatal specialist noted a very small hemangioma on one twin's liver. He acted completely unconcerned, and said that a lot of babies have them. I have been researching on my own because I don't want to scare my daughter. Has anyone else had experience with this, and what was the outcome?
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Old 01-05-2013, 05:09 AM
TaniaB TaniaB is offline
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Join Date: Jan 2013
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Default Is Liver hemangioma & liver AVM the same thing?

I am a 30 year old women with 2 kids, since i start having kids i start having stomach issues along with other medical issues, i was 157 lbs in the beginning of july & now jan 4th imy weight varies between 113-117 , i have been throwing up off n on since july, my stomach pain has gone from 0 to 10 & stayed that way, i get very dizzy, & lately my hands have been going numb & tingly & stays cold for hours on end. The doctor called me & told me i have tangled veins in my liver, im not sure if i said that correctly but i have been dying for answers, i feel so skinny it hurts, i also have fibromyalgia & my TMJ is so bad that im in constant pain. Top it off i also have 2 hard bumb on my tailbone, the doctor said its not a cyst becauae its hard like bone & does not show up on an xray but knows its there. Any help/advice you can give would be greatly appreciated.
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Old 01-05-2013, 02:08 PM
missy missy is offline
Join Date: Apr 2006
Posts: 1,794

Hemangioma usually go away in infancy, but many times doctors still use that term to diagnose adults.

Have you considered seeing a specialist?

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Old 01-28-2013, 04:16 PM
sirios sirios is offline
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Join Date: Jan 2013
Posts: 1
Default Other hormonal issues?

Hi I also have an hemangioma and also experience other hormonal issues like acne, heavy and painful periods, facial hair, etc.
Anyone with the same symptoms? I also had a hormonal blood test done and got some altered findings in SHBG. Any clues?
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