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Old 06-27-2006, 01:58 PM
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Default need for psychological support???

I am new to this site. I have facial PWS and I will be receiving doctorate in psychology next month. In the back of my mind, I have always thought about establishing a practice in which I specialize working with families, children and adults with facial differences (I greatly prefer the word differences to disfigurements). I am interested in others opinions and/or experiences re: if there is a need for this, if they have worked with someone in past and found it helpful, etc. I will be residing in the NE Ohio region.

Thanks in advance for your thoughts/reflections.
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Old 06-29-2006, 04:09 PM
hankbartenbach hankbartenbach is offline
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Join Date: Oct 2002
Location: Nebraska
Posts: 533


I think it would be a great idea. I think you should go for it and maybe even talk to Linda (the founder of this website) and see if you can get something set up here on VBF to offer some help to some people. That is if you would be interested. I think either way, you will do great in what you choose. Just look what you are accomplishing now. I just want you to know that I am glad that your PWS did not hold you back from success.

Just had a thought, could you read a paper I wrote on social issues? I would like to see what you think about it since you might be able to relate to it from your personal life and from your education stand point. I can not remember were it is on this site but I have a link to it on my website at the bottom of the front page you can find the link social issues. Either email me personally or message me back here if you could. Thanks.

I wish you the best and hope to talk to you soon.

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Old 07-09-2006, 02:19 AM
kaykay kaykay is offline
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Join Date: May 2006
Posts: 233

Go for it ! i think its a great idea also. I believe there is a definite need for it. For parents and children alike. I think it gets harder and harder for kids these days especially. Adults.
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Old 07-09-2006, 01:09 PM
KristieinStMarysGA KristieinStMarysGA is offline
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Join Date: Feb 2005
Location: St Marys GA
Posts: 130

I think it's a wonderful idea! I don't have a PWS but a venous malformation and KT Syndrome. So I wear a compression sleeve on my arm and I recieve tons of stares about it! So I can only imagine what it must be like for someone with a facial PWS or other difference.

It's a fantastic idea, and will help many!

Good Luck!

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