invitation to gather in NYC - Vascular Birthmarks Foundation Forum
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Old 01-29-2007, 07:36 PM
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Exclamation invitation to gather in NYC

Hello everyone. I'm new to this discussion. I'm an adult woman who's lived all her life with a large red birthmark on one side of my face. I've lived pretty much on my own with this, and I would love to meet other adults who've shared this experience.

I'm curious to hear how others have lived with this over the years, who their guardian angels and lifelines have been, how they see the hardships, and what strength and wisdom they think it's given them. I don't have any agenda. I have a great life and am happy. I would just like to meet others who share this challenge -- face to face, not on line.

I'm hosting an informal gathering in New YOrk City where I live, on April 15, 2007, 1-3 p.m, for people with these "what happened to your face?" kinds of things. The point is to have a good time and learn from each other. I thought we could each bring 3 photos from different points in our lives and put them up on a board. If you'd like to come, please reply here and I"ll get back to you. THANKS!
Mary Louise
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Old 01-30-2007, 02:49 AM
hankbartenbach hankbartenbach is offline
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Join Date: Oct 2002
Location: Nebraska
Posts: 533

Hi Mary,

First of all welcome to the group.

I do not live on the east coast but I know several people that do that might be interested in getting together with you.

If you would email me I can put you into contact with them. You can email me at my website email at

Talk to you soon.

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Old 01-31-2007, 12:20 AM
eprmo eprmo is offline
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Join Date: Dec 2003
Posts: 133

I'd also like to speak with you,,

please email me @:

Elissa Rifkin
VBF Developmental Specialist
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