Has anyone used Aldara on a PWS? - Vascular Birthmarks Foundation Forum
  Vascular Birthmarks Foundation Hemangiomas  |  Port Wine Stains  |  Vascular Malformations  
VBF logo
1994 - 2015
Celebrating 21 years with
80,000 networked into treatment

Dr. Linda Rozell-Shannon, PhD President and Founder

Donate to VBF    Shop VBF Products

Go Back   Vascular Birthmarks Foundation Forum > Port Wine Stain Help > Port Wine Stain Help and Resources

Thread Tools Display Modes
Old 06-14-2009, 01:24 AM
Melaina'sMommy Melaina'sMommy is offline
Junior Member
Join Date: Oct 2008
Location: Las Vegas
Posts: 10
Default Has anyone used Aldara on a PWS?

My 4yr old's doctor wants me to try the Aldara cream on her face after a treatment to see if it helps get better results since she has hit a standstill on the progress she is making on each laser treatment. I understand there are risks involved and want to know if anyone has used it and if they had good or bad experience/results from it.

Reply With Quote
Old 06-16-2009, 03:12 AM
tess tess is offline
Junior Member
Join Date: Mar 2008
Posts: 11

Hi, Linda!

We use Aldera cream with ouur 19-month-old daughter once following a laser treatment. We had heard it might help keep the vessels from regrowing or healing after being destroyed by the laser, and were excited to give the cream a try!

Unfortunately, the cream migrated from her cheek, where the PWS is, to her mouth. (We think her pacifier is to blame for smearing the Aldera cream onto her lips.) The cream caused a terrible blistering across both her lips within a day or two of beginning treatment. The first day, I thought she just was developing chapped lips from a cold. The next day, I realized the blistering was getting worse - MUCH worse.

We discontinued the Aldera cream, but it took almost a week for her mouth to heal, during which time she could not eat or sleep. The blistering covered both lips entirely, even though we had never directly applied the Aldera cream to her mouth. It is hard to overstate how terrible the blistering was. It was truly nightmarish to watch her suffer such pain.

My husband and I, along with our doctor, have agreed not to use the Aldera cream again until our daughter is old enough to use appropriate caution in keeping it only on the treated area of her face and away from her lips. Perhaps your daughter, at age 4, can will be able to do so!

We are hoping that the Aldera cream will one day be another effective tool in our treatment program... but, for now, we've had to set it aside until our daughter is a bit older.

Blessings to you and your daughter as you continue her treatment.
Reply With Quote
Old 06-22-2009, 06:28 AM
Melaina'sMommy Melaina'sMommy is offline
Junior Member
Join Date: Oct 2008
Location: Las Vegas
Posts: 10

Thank you for the response. The reason I asked was because of some of the info I read on the internet about possible complications such as the blistering on the lips that you described as well as many other worse problems. One site I found disturbing was doctorsaredangerous.com which scared the heck out of me. I've decided not to use the cream on my daughter because I think that even at 4yrs old, there is a high probability that the cream will end up on her lips and don't want to risk it. Your story has given me confirmation that I have made the right decision for her at this time.

Reply With Quote

Thread Tools
Display Modes

Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

vB code is On
Smilies are On
[IMG] code is On
HTML code is Off
Forum Jump

Similar Threads
Thread Thread Starter Forum Replies Last Post
Info on Aldara (Imiquimod) for H mommabear Help and Resources for Hemangiomas 10 02-04-2009 06:29 PM
Aldara, Ranibizumab. What do you think? wesna Port Wine Stain Help and Resources 0 07-11-2008 08:32 AM