comlpex case of adult diffuse microcystic malformations of the face and neck - Vascular Birthmarks Foundation Forum
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Old 04-23-2009, 01:35 PM
larissa larissa is offline
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Join Date: Apr 2009
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Talking comlpex case of adult diffuse microcystic malformations of the face and neck

Hi, I have only discovered this page today, and am so excited for this opportunity. I have not been diagnosed with this condition officially, but specialists have considered information, and confirm there is a strong chance that I have this disease. I am 38 yrs old, and have had this condition for over 8 years now (diffuse Lymphangioma), effecting mainly my face, neck, chest and arms (Lymphoedma to the leggs). In 2004, my body could not fight the symptoms any longer (following the involvement of my organs), but I did discover a non-conventional treatment that has literally saved me, and is responsible for a great deal of repair and positive effects to my symptoms. The treatment is known as "Lymphoedran" and is bought here in Australia from naturopaths. I am still chasing diagnosis so that I may officially share my experiences with credibility, and in order to hopefully help others. In the meantime, I am hopeful this treatment just may work the same miracle for someone else. This is not a certainty of course, but feel free to contact me (Larissa) at for more info, I am happy to share. Despite sounding like one, I am by no means a sales person (LOL)
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Old 05-09-2009, 11:23 PM
sweet pea sweet pea is offline
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Join Date: Jul 2006
Location: Southern California
Posts: 111

that's a pretty new up and coming treatment for lymphadema, but I do not think it is for lymphangioma/lymphatic malformations, from my understanding. The causes of the two conditions, being LMs vs lymphadema, are different and treatments have to be catered to the specific condition a person has.
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