VM in left thigh & RSD - Vascular Birthmarks Foundation Forum
  Vascular Birthmarks Foundation Hemangiomas  |  Port Wine Stains  |  Vascular Malformations  
VBF logo
1994 - 2015
Celebrating 21 years with
80,000 networked into treatment

Dr. Linda Rozell-Shannon, PhD President and Founder

Donate to VBF    Shop VBF Products

Go Back   Vascular Birthmarks Foundation Forum > AVM Help > AVM Help and Resources

Thread Tools Display Modes
Old 02-21-2007, 10:52 PM
sprtsgrl72 sprtsgrl72 is offline
Junior Member
Join Date: May 2006
Posts: 15
Default VM in left thigh & RSD

I am 34 years old and have an extensive VM in my left thigh. I've had 3 sclerotherapy procedures in the last year with a lot of complications. I wasn't able to walk last summer without crutches for 3 1/2 months. I've also had symptoms of Reflex Sympathetic Dystrophy (RSD), where the pain goes down my leg into my foot and my foot turns cold/numb. Has anyone else had RSD symptoms associated with a VM? I've seen a neurologist and have had 3 nerve blocks that didn't really help. All my motor nerves test fine. I've had the 3 sclerotherapy procedures in Charlotte, NC with a dr that is registered on this site. He can't explain my RSD symptoms. He suggested I e-mail Dr. Konez on this site for his opinion, but I do not get a confirmation e-mail or a response. I just tried to post again. I am wondering if there is a clinic that I need to go to that can treat these multiple symptoms I have. I am not sure that the sclerotherapy is making me better or worse. I have been in constant pain since July 2005 (never had any symptoms prior to that, although I was very active). Any suggestions would be greatly appreciated.
Thank you,
Reply With Quote
Old 02-21-2007, 11:38 PM
missy missy is offline
Join Date: Apr 2006
Posts: 1,794

Hi Kim,

How long ago did you write to Dr. Konez? I can check up on it.

Many times, though, services like AOL, Yahoo, or Hotmail block what they see as automatic submissions from websites and put our confirmation notices in their "trash" (not even the SPAM folder... they just delete it altogether!!).


Reply With Quote
Old 02-22-2007, 12:12 AM
sprtsgrl72 sprtsgrl72 is offline
Junior Member
Join Date: May 2006
Posts: 15

I first e-mailed Dr. Konez on 11/1/06, I did get a return to sender error (to my yahoo e-mail) so then I used the Contact VBF page and re-sent the e-mail and never heard anything. I just sent one today but have not gotten a confirmation yet that it was received.
Reply With Quote

Thread Tools
Display Modes

Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

vB code is On
Smilies are On
[IMG] code is On
HTML code is Off
Forum Jump

Similar Threads
Thread Thread Starter Forum Replies Last Post
facial PWS, left or right side ? kaykay Port Wine Stain Help and Resources 62 04-05-2013 06:53 AM
Port wine stain on left leg, and Confused garcia03 Port Wine Stain Help and Resources 5 11-14-2009 11:55 PM
Compund hemangioma on left cheek byford Help and Resources for Hemangiomas 4 03-31-2009 06:17 PM
cont. of PWS on left or right side of the face? hankbartenbach Port Wine Stain Help and Resources 1 11-11-2008 06:29 PM
Internal VM in thigh sprtsgrl72 AVM Help and Resources 6 06-03-2006 01:59 AM