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Old 05-02-2003, 01:49 AM
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Default PWS Conference

When will more information be posted on the PWS Conference in New York? Is there any way to get a complete list of speakers, etc.? Thanks
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Old 06-24-2003, 11:28 PM
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Default Re:PWS Conference

Here are the details - straight from the website:

Event of Interest
PWS Conference in NYC October 2003 Announced
published September 23, 2002

The following information is our tentative plan for the Vascular Birthmarks Foundation Port Wine Stain Conference to be held in New York City.

Date: Friday, October 17, and Saturday October 18, 2003 Place: Welcome Reception, Friday October 17th, 7pm (cookies/beverages for kids and wine/cheese, etc. for adults will be provided) at NYU. Dr. Geronemous will present at 7:30 until 8:30.

Date: Saturday, October 18, 8:30am - 12:00pm - Conference Place: NYU Tentative Speakers: Dr. Waner, Dr. Mihm, and Dr. Geronemous has speakers for Klippel Trenaunay and Sturge Weber. Subjects will include: latest pathology research in causes, classification of Port Wine Stain, new developments in management (Dr. G. has a specialist from California who may speak on an exciting new treatment) Speakers will be firmed up in the next month.
12:00-1:00 pm - lunch will be provided for families and speakers. There will be childcare during the conference.
1:00-6:00pm - clinic at Dr. Geronemous Office - directions and info to follow.
7:00pm - faculty/speakers/coordinators dinner. Families will be on their own to mix, mingle, visit the Big Apple.
There is discussion about conducting some meeting sessions during the 1:00-6:00pm clinic time. Kathy Francos has given me a list of topics. I am open to anyone who wants to set something up. We can ask Dr. G. for two or three small meeting areas or get meeting areas at NYU. Please send info on topics or discuss with Kathy Francos of PWS-list newsgroup.

Fees: $50 donation to VBF per family for conference and an additional $50 for clinic. You can attend one or both. Both will be a total of $100 donation to VBF. All donations are tax deductible.

Kathy Francos will be my downstate coordinator and is looking into lodging. Since we have a long lead on this, people would be smart to make a decision early and start looking to make this a fun, adventure, holiday.

Registration, donor, and volunteer forms are available here:
[Adobe pdf format] [Microsoft Word format]

Linda Shannon
Vascular Birthmarks Foundation.

(Contributed by Linda Shannon)
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Old 06-27-2003, 05:33 PM
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Default Re:PWS Conference

I will be happy to answer any questions about the pws conference. My email address is

We have secured a number of rooms at the Comfort Inn Manhattan, 42 W. 35th Street 212 947 0200. They have given us a rate of $125 per nite for Oct 17 and/or 18. You must tell them you are with the VBF conference.
From there it is about a 10 minute walk, or a short bus ride away. It also includes a continental breakfast.
If you can get a better rate on your own, by all means, do so.

Kathy Francos
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