We finally found a pediatric dermatologist to address my daughter's needs. The only drawback is that she is in Miami (five hours from Tampa). But I have also found that the Shriner's hospital might be able to help after a diagnosis is made. So I feel a little bit better. I just wish that we had someone close by. I should go back to school and become a pediatric dermatologist! Anyway, we have to be in Miami on July 19th at Dr. Duarte's office at Miami Childrens hospital. I think that she will be okay until then. Is there anything I should do before then? Thanks to everyone here for all their help and words of support. I just wish that people were more aware of these types of syndromes and could be of more help. I feel like I know more about K-T than some of the Doctors I have talked to! I know its rare and I try to take that into consideration. Thank you again for all the help!