Can someone help me determine (photos) - Page 2 - Vascular Birthmarks Foundation Forum
  Vascular Birthmarks Foundation Hemangiomas  |  Port Wine Stains  |  Vascular Malformations  
VBF logo
1994 - 2015
Celebrating 21 years with
80,000 networked into treatment

Dr. Linda Rozell-Shannon, PhD President and Founder

Donate to VBF    Shop VBF Products

Go Back   Vascular Birthmarks Foundation Forum > Additional Resources > General Resources

Thread Tools Display Modes
Old 10-03-2007, 03:30 AM
pichpaw pichpaw is offline
Junior Member
Join Date: Aug 2007
Posts: 24

Oh I am so sorry for what you're going thru but glad you're so on top of it and covering all of your bases. Good luck and keep us posted.
Reply With Quote
Old 10-29-2007, 06:23 PM
mom0507 mom0507 is offline
Junior Member
Join Date: Aug 2007
Posts: 7

Jaelyn's appointment with the "vascular clinic" on Oct 22nd -
There was no "team of doctors" as was described by the first specialist we saw. Just the main doctor and 1 assistant. He asked a lot of questions, then he took a look at each of her hemangiomas and measured them. I believe I overheard that the one on her neck is 6cm across. He did say that he is not concerned about internal ones because most doctors worry if the child has 5 or more, not 3. So that was a relief. The one on the neck is still a concern because of its location and because of the fact that we have still seen some gradual growth at her age (when it should have stopped).

So the next step is to have her evaluated by an ear nose and throat doctor, to determine if it's pressing on her airway. He wants us to call him on Wednesday because he wanted to ask the radiologist about imaging - what would be the best type, ultrasound, MRI or xray, based on his description of the hemangioma.

He did say that he thinks she will be fine in the long run and that she can get through this without intervention. It's just hard to tell from the outside how deep it is. We did tell him during the questioning that she has been coughing lately for no reason and that she has a raspy snore when she is asleep. Those are possible symptoms that it's slightly pressing her airway, but not necessarily.

Oh and he pressed her abdomen to check her liver and he said it felt normal. That would be the worrisome location of internal ones if she had them, and he didn't feel anything abnormal about it.

So it sounds good so far! Even though it seems like she is in the clear, we are still so happy we are getting her looked at. We both feel better about it, we just wanted to make sure. I'd rather be safe than sorry, especially right now while we have good health insurance.

Tomorrow we are taking her to have an ultrasound done on her neck. After that appt we are taking her to the ENT for an evaluation. I guess as long as the tests come back saying her airway is not being bothered, then we are OK to wait it out for the hemangioma to fade on its own.
Reply With Quote
Old 04-09-2009, 12:16 AM
Joshua'smom Joshua'smom is offline
Junior Member
Join Date: Aug 2006
Location: AZ
Posts: 3
Default pre-existing conditions on insurances

Actually, most pre-existing condition clauses have a 11-12 month clause. If your husband does get a job with medical insurance, call te insurance company and ask them about their policy on pre-existing conditions. I have had experience with this since I have had cancer and both my boys have asthma and my son has a lymphangioma. I have found that the clause is generally after 11 or 12 months the insurance company will start picking up the cost of the condition. But make sure you call and find out. Don't rely on the information the Human Resources sends out, it is never ALL the information you need.
Reply With Quote

Thread Tools
Display Modes

Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

vB code is On
Smilies are On
[IMG] code is On
HTML code is Off
Forum Jump

Similar Threads
Thread Thread Starter Forum Replies Last Post
Before and after photos Soteris Christodoulou Help and Resources for Hemangiomas 3 02-03-2010 10:27 PM
Wanted to share my daughters progression photos groovysmurf Help and Resources for Hemangiomas 4 05-07-2008 09:08 PM
Surgery is finally over! ashesmom Help and Resources for Hemangiomas 7 03-31-2008 03:45 AM
15 week old Ruby with H on scalp lpenman Help and Resources for Hemangiomas 12 01-21-2008 02:33 AM
Our embolization photo's juliemn AVM Help and Resources 3 02-25-2005 02:17 AM