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Old 11-12-2007, 02:08 AM
ellybella ellybella is offline
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Join Date: Nov 2007
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Default deep hemangioma question...

my daughter, 6 weeks, was diagnosed by our pediatrician this week with two deep hemangiomas, a larger one on her back/side which is raised with slight redness and one on her labia about the size of a marble with no redness. she also has a small spot, a couple pencil tips in size, on the tip of her tongue and another small spot on her neck.

do all deep hemangiomas start out without redness, they become redder as they grow?
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Old 11-12-2007, 03:52 PM
eprmo eprmo is offline
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Join Date: Dec 2003
Posts: 133

all hemagioma's grow and appear different..some start very pale white/ some blue, some mauve,, to answer your question, not all H's turn red...

my daughter's started as a pale gray, and each day worked it's way towards "fire-engine red".. going through all shades..from pink, to mauve, it started to go away, it followed the same pattern.
Elissa Rifkin
VBF Developmental Specialist
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Old 04-14-2009, 06:11 AM
kimmiegirl22 kimmiegirl22 is offline
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Join Date: Apr 2009
Location: az
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I have a LARGE deep and superficial hemagioma on my entire left side of my back and left side. I am now 27 years old and I have never noticed a change in color. It is blue in color with little red hemagioma bumps on top of the already blue-ish skin- I have obviouly had it my entire life and wish there was something i could do to get rid of it.
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Old 04-16-2009, 01:35 AM
nickbar nickbar is offline
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Join Date: Aug 2003
Location: Pacific Northwest
Posts: 1,054

Hello, I would suspect that you do not have a true hemangioma, likely a different vascular malformation (although it is a common term used to classify many vascular lesions...but simple isn't correct term)..
If you would like to email me, I might be able to help get you a proper diagnosis and options.
Corinne Barinaga
VBF Director of Family Services
vbfadvocate @ live. com (no spaces)
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