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Old 05-21-2008, 01:35 AM
byebyeh byebyeh is offline
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Join Date: May 2008
Posts: 4
Cool Would like your suggestions! What to do? How to get rid of it!?

Hi Everyone,

Our baby is 6 weeks old and he seems to have a growing birthmark on the side of his neck. It seems to be a strawberry hematoma. It started off much smaller and seems to have grown pretty good over the last 6 weeks.. We of course are exploring different options to see which might be suited for us. I am attaching a picture for you to view, please advise what you think the best method to proceed would be. Trying to get in with a specialist on these things ASAP. Thanks again!

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File Type: jpg 6weeks1.JPG (37.6 KB, 84 views)
File Type: jpg 6weeks2.JPG (34.1 KB, 64 views)
File Type: jpg 6weeks3.JPG (36.3 KB, 64 views)
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Old 05-21-2008, 04:28 AM
mmarrari mmarrari is offline
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Join Date: Jul 2007
Posts: 20

Congratulations on your baby. It is always important to have a specialist evaluate hemangiomas, especially if it is growing fast, to make sure it is not interfering with any function and assess the need for treatment (or lack of). You can email an expert from the "Ask the expert" section on the main page of this site. Dr. Levitin is Dr. Waner's partner in NY. he is very experienced and caring and I am sure he will get back to you soon. You can attach a picture and have him give you his opinion. Good luck! your baby is adorable.
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Old 05-22-2008, 02:52 PM
yoopertroll yoopertroll is offline
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Join Date: May 2005
Posts: 10

Your first step is getting in with a specialist. There are many all around the United States. Due to the location it may indicate that there are airway hemangiomas as well. He also should be screened for PHACES. You son will probably be started on steroids to control the growth. Your Pediatrician may even be able to start him on the steroids. There are side effects from the steroids but the benefits usually outweigh them. There is medicine to help with the tummy issues some get from being on them. Keeping it small will help it go away faster later.

My daughter is 4 and had a large H that stretched from her rt ear to her chin, neck, lower lip, mouth, tongue, with spots on her lt ear, chest, rt nipple, rt side. She was on the steroids for a year and then we watched and waited for 18 months and then we started laser at age 2-1/2. She has had lip reconstruction surgery done to fix the ulcer scar and remove excess tissue from her lip. To date she has had 7 lasers.

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Old 05-23-2008, 01:50 AM
nickbar nickbar is offline
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Join Date: Aug 2003
Location: Pacific Northwest
Posts: 1,054


Based on the photos, I would conclude that this is a segmental hemangioma (hematoma is pooled blood caused by trauma...not the same thing). My son had a similar h. on his face and I am sorry if i am repeating myself and we have already talked via email. We had a lot of success with our route of treatment, but even h. that look similar may not require or respond to the same tx. I would be happy to share some options with you based on the pictures you shared. Feel free to email me and check out my son's photos on the vb support group on msn under photos albums NIcholas Segmental hemangioma on page 22http://groups.msn.com/vascularbirthmarksupport/general.msnw?action=get_threads
Corinne Barinaga
VBF Director of Family Services
vbfadvocate @ live. com (no spaces)
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Old 05-23-2008, 08:34 PM
byebyeh byebyeh is offline
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Join Date: May 2008
Posts: 4

Thanks to everyone for their suggestions. We are going to go after this aggressive. Will update everyone with the progress..
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