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Old 05-03-2012, 03:27 AM
Kirstyloo Kirstyloo is offline
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Join Date: May 2010
Posts: 8

While we didn't try the meplex pads, we did try a couple of pads with adhesives...some intentionally some because we bought the wrong pads. In both cases, they were worse the plain straight pad. The adhesive pads either shifted (occasionally over the ulcer) or they stuck so tightly that they were hard on Emily's surrounding skin when they were removed. Again the aquafor adhered pads were effective most days and they were able to prevent stool from entering the ulcer if they diaper was changed quickly.

Emily is now almost 2 years past the ulceration. The site is largely scarred over. Only very small patches of red are still visible. The tissue is strong, but the resulting scar isn't pretty. She is lucky because it won't be visible with underwear on...so it shouldn't be too notable during gym class.

Hang in there! It does get better.
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Old 05-03-2012, 12:42 PM
spaatz1329 spaatz1329 is offline
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Join Date: Jun 2011
Posts: 27

we have had issues with this off and on and tried a variety of things. When ellie had her first admission for chemo a month ago they gave her sensi-care. Works like a charm. It is very thick and water resistant so it stays on and covers the area, providing a barrier. Ask your clinic if they have any!
Ellie- born 5/24/11
Forehead Hemangioma, Finger Tip Hemangioma
Large Diaper Area Hemangioma w/ PELVIS Syndrome
Tethered Spinal Cord, Bladder Exstrophy/Cloacal Anomoly
Diagnosed with Rhabdomyosarcoma 3/19 begins 46 week Chemotherapy treatment 4/9
On Propanol 1.4mL/3 times daily
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