I too have been suspected of having KT Syndrome, as I have a left arm VM, with a major difference in the thickness of my left arm.
Although, I don't have a visible PWS, the doctors have yet to agree to wether or not I actually have KT Syndrome.
The one piece of information that I was given (that I found to be very helpful) was that regardless of the disagnosis the treatment was the same at least for the problems I was dealing with.
Sclerotherapy, and it has worked.
I have a venous malformation throughout my left elbow and forearm, yes my left arm is thicker than the right, the left is also a bit longer.
I don't have a PWS, if you suspect your child may have KT I would contact one of the doctors on the main page.
Last edited by KristieinStMarysGA : 09-15-2008 at 03:21 PM.
Reason: add a few things