New here... - Vascular Birthmarks Foundation Forum
  Vascular Birthmarks Foundation Hemangiomas  |  Port Wine Stains  |  Vascular Malformations  
VBF logo
1994 - 2015
Celebrating 21 years with
80,000 networked into treatment

Dr. Linda Rozell-Shannon, PhD President and Founder

Donate to VBF    Shop VBF Products

Go Back   Vascular Birthmarks Foundation Forum > Hemangioma Help > Help and Resources for Hemangiomas

Thread Tools Display Modes
Old 03-02-2009, 10:40 PM
Mommyof2angels Mommyof2angels is offline
Junior Member
Join Date: Mar 2009
Posts: 2
Default New here...

Hello! I stumbled across this site looking up information on deep hemangiomas. My 6 month old appears to have one on her back. She has a strawberry one on her chest/belly area thats a wee bit smaller than a pencil eraser. She's had that one since I'd say 6 weeks or so. This is the first time I've noticed this lump on her back and its kind of big. I'd say its as big as a half dollar coin. She also has an ear infection and the dr thinks its sticking out more because she's been running fevers. Believe me, it scared the daylights outta me since I thought it was a tumor or something. I'm encluding a photo of what it looks like. We go see the ped. derm affilliated with CH of Pittsburgh next Wensday. What should I expect at the first visit??
Reply With Quote
Old 03-03-2009, 06:39 PM
mamatomaysie mamatomaysie is offline
Junior Member
Join Date: Feb 2009
Posts: 18

Well, you're right; hemangiomas are tumors, they're just benign and generally go away on their own.

We saw three different specialists for my daughter's lip hemangioma, and pretty much got three different opinions. Be prepared for that, and if you're not satisfied with their recommendation, definitely see someone else. Our pediatrician didn't know what to do about it, local dermatologist prescribed a topical antibiotic for her ulceration (which was NOT infected), facial surgeon recommended re-evaluation in a few months or laser if the ulceration returned, and pediatric dermatologist recommended propranolol.

Definitely do your research about treatment options so you'll know what you're open to when you hear their opinions. I was not open to using oral steroids, but I was interested in finding out if Maysie was a candidate for propranolol, so we drove two hours for an appointment with a specialist with propranolol experience. Good luck!
Reply With Quote
Old 03-07-2009, 05:22 PM
Mommyof2angels Mommyof2angels is offline
Junior Member
Join Date: Mar 2009
Posts: 2

Thank you!

What all options do they have when it comes to these? I see alot of parents posting about that other stuff you were mentioning. I dont think I want to do the oral steroids on her. If it turns out its not bugging her and wont bother her in the future, I think I want to leave it go. It's not on her face or anything, so I dont want to put her thru anything drastic if it's not needed.

Her Pedi said that those tend not to go away on their own. I think when she's older, that her bra strap would lay where its at so we have to take that into consideration I guess too. I dont know yet.
Reply With Quote

Thread Tools
Display Modes

Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

vB code is On
Smilies are On
[IMG] code is On
HTML code is Off
Forum Jump