Hi and welcome,
So many doctors still use the term "hemangioma" when, in fact, you should be searching for information on venous malformations.
Arteriovenous Malformations are always present at birth but are usually not noticed until later in life. Sometimes they do not appear until adulthood. Defective blood flow has been associated with these lesions. As the lesion ages, the vessels enlarge and thicken to compensate for the increased blood supply. There are two grades: low and high. Low grade grow slowly with the child and high grade expand rapidly, growing faster than the child until the lesion may eventually become life threatening.
An AV malformation is a firm mass. Common sites are the lips and other head and neck areas. Mixed malformations include a combination of two or more vascular lesions.
This is exactly what you are describing.
Who will you be seeing next month?
I was going to link to the Wikipedia page on the subject, but it is alarming!!! If you go read that on your own, please do not read that one without doing some meditation first ... sheesh!!! It presents the signs and symptoms in very alarming language!
So, read that at your own risk.
Get in touch with one of our experts here: http://birthmark.org/experts.php
And keep in touch, Miriam! I want to hear how things go.