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Old 08-03-2009, 02:38 PM
becci5 becci5 is offline
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Join Date: Aug 2009
Posts: 1
Question daughters pws growing

hi my daughter (19 months old) has a pws on the left hand side of lower back. Although i was aware it would grow as she grows it seems to be growing faster than her rate of growth and has now started to cover her spine. Has anyone else experienaced this?; any thoughts? is this normal?
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Old 08-03-2009, 10:22 PM
missy missy is offline
Join Date: Apr 2006
Posts: 1,794

I'm not quite sure, but others will chime in soon.

Just wanted to say "welcome!"

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Old 08-07-2009, 05:11 AM
nickbar nickbar is offline
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Join Date: Aug 2003
Location: Pacific Northwest
Posts: 1,054

Can you give me more details of her diagnosis of PWS? If you prefer you can email me directly at the address below. Explain what you mean by growing? Speading out or thickening? Where is she being seen for this? Any treatments to date, etc.

Corinne Barinaga
VBF Director of Family Services
vbfadvocate @ live. com (no spaces)
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