Shannon and Missy, thank you so much for your responses! Shannon, his surgery will happen at Mass General; we had a consultation at Children's in Boston, but apparently they don't consider surgery on children under 3. How old was your daughter when she had surgery? Were you/are you happy with the outcome? I'm relieved to hear that you were able to accompany her into the OR; I'm hoping that'll be the case for us, too.
Missy, I know!! He's been poked by a few little kids on the playground/at my older son's preschool before I had a chance to intervene. Genuine and harmless curiosity, but still. Adults mostly stare and occasionally make bizarre comments. We're leaning towards surgery to spare him more of this, but would love to hear about others' experiences! Thanks again