Lincoln's surgery is 1-11-11. Definitely a date we can't forget
He will have the as much fatty tissue as possible removed, his cord untethered, and possibly a shunt put in to drain the fluid off his spinal cord.
Our Dr in Iowa City, IA (7.5 hrs from home, we live in SD) has noticed a big change in Lincoln's bladder size...it has nearly doubled in the past 2 months. Also his urodynamics showed high pressure levels. After that last series of MRI's he also noticed the fatty tissue completely fills that sacral cavity and is putting a lot of pressure on the spinal cord. Also the fluid in his spine covers his back from around the hip bones up to about the shoulder blade area and is pushing the spinal cord to the right.
One other change that has been noted is that while the segmental hemangioma seems to have slowed down in growth, Lincoln has some atrophy on the left side (same side as Hem). It is most noticeable on his bottom region. Lincoln had a set of immunizations just last week. We have never had problems before, but this time he ended up with a very swollen and infected leg. We are unsure if it was caused by bacteria on his leg or if the blood flow to that leg is limited enough that there are some other issues. Either way our family physician has advised us to not use that leg for immunizations.
We will let you know how everything turns out