Angiokeratoma? What? - Vascular Birthmarks Foundation Forum
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Old 01-26-2012, 11:15 PM
muse151 muse151 is offline
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Join Date: Jul 2010
Location: Montana
Posts: 10
Default Angiokeratoma? What?

I emailed one of the doctors on this website. I always thought i had a port wine stain and all the doctors i have seen have told me that. As i get older (i am currently 20) it has gotten thicker and rough. Lots of blood blisters and some parts are scaley. Well when i sent a picture to a doctor and described it he said that he thinks i may have Angiokeratoma. I have no idea what this is and there is not much information on it that i can find.
just wondering if anyone knows much about this, or has it themselves? I am pretty worried about it, and just want it gone.
When i looked up pictures all the cases looks ALOT worse them mine...but i am worried mine will soon become like that.
the picture below is the only birthmark picture i have of mine and its old and not very good...but whatever helps.
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Old 01-29-2012, 02:37 PM
KatieG KatieG is offline
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Join Date: Jun 2010
Posts: 143

Can I ask if this was present at birth? or did it show up after birth?

My daughter has VERY similar markings on her left leg in the same pattern as yours. I have been told it is not a port wine stain, but her doctor isn't sure about WHAT it is. She is currently having laser surgery on it but we haven't seen much change after 2 treatments.
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Old 01-30-2012, 02:19 AM
nickbar nickbar is offline
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Join Date: Aug 2003
Location: Pacific Northwest
Posts: 1,054

Did the doctor you spoke to provide you with treatment options?
Corinne Barinaga
VBF Director of Family Services
vbfadvocate @ live. com (no spaces)
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Old 01-31-2012, 09:36 PM
muse151 muse151 is offline
Junior Member
Join Date: Jul 2010
Location: Montana
Posts: 10

Yes, my birthmark has been with me since i was born.
I had laser surgery for two years once a month, NO change AT ALL. just money down the drain and tons of pain.

The doctor asked me if i wanted to travel, I live in montana, i can get laser surgery here...but nobody really specializes in i would have to travel to spokane, Washington....inconvienent
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