Nervous about giving daughter Propranolol - Vascular Birthmarks Foundation Forum
  Vascular Birthmarks Foundation Hemangiomas  |  Port Wine Stains  |  Vascular Malformations  
VBF logo
1994 - 2015
Celebrating 21 years with
80,000 networked into treatment

Dr. Linda Rozell-Shannon, PhD President and Founder

Donate to VBF    Shop VBF Products

Go Back   Vascular Birthmarks Foundation Forum > Hemangioma Help > Help and Resources for Hemangiomas

Thread Tools Display Modes
Old 04-27-2012, 06:40 PM
smilo143 smilo143 is offline
Junior Member
Join Date: Apr 2012
Posts: 7
Default Nervous about giving daughter Propranolol- pictures included

I have a 5 month old daughter with an H on cheek about the size of a nickel. I have a 4 year old that had an H on her crown of head when she was baby and it faded completely way by 3 years old(hair also covered it up). I went to Vanderbilt childrens dermatologist(Mike Smith) this week and he is a believer in Propanolol. He has seen great results. But I am very nervous b/c drug has not been used very long on babies and is still a trial drug. Has anyone heard of a face H going away of this size and leaving no scars? Anyone had bad side effects of Propanalol(i've heard BP/glucose needs to be monitored)?!/photo.php...type=1&theater!/photo.php...type=1&theater!/photo.php...type=1&theater

Last edited by smilo143 : 04-27-2012 at 07:19 PM. Reason: pictures
Reply With Quote
Old 04-28-2012, 12:15 AM
smurph smurph is offline
Senior Member
Join Date: Jan 2007
Posts: 459

Hi there!
We did not use propanalol because it was not used at the time my daughter was treated but I have heard many positive things with not too many side effects. I'm sure others will chime in. Mostly I want to write because your post jumped out at me for another reason. I have 4 daughters and 3 have hemangiomas. My 7 year old has one on her lip (steroids, surgery and laser). One of my 3 year old twins had a big one the encompassed the whole side of her hand (no treatment). It's almost entirely gone now. And then her twin sister had a small one on her arm that is fading gradually. Hers is the smallest and seems to be taking the longest to go away ironically. I thought it was interesting to see you also had 2 daughters with hemangiomas.

Reply With Quote
Old 04-28-2012, 03:33 AM
smilo143 smilo143 is offline
Junior Member
Join Date: Apr 2012
Posts: 7
Default 2 daughters with H's

That is interesting to see the link.I've heard that having children early and also twins is a link to hemangiomas. The only reason I had all 3 of my daughters early was b/c my blood pressure went high the week I delivered them all. I normally have great blood pressure. I was told my 1st and 3rd pregnancies looked like I started out being pregnant with twins; I had 2 placentas after delivery with those births. My 4 yr old daughter was 3 1/2 weeks early, my 2 yr old daughter was 1 1/2 weeks early, and my 6 month old daughter was 3 weeks early.
Have you had much success with no scarring on the face? The doctor said if we left it alone to go away on its own that she may need surgery to remove extra skin or laser for scarring.
Reply With Quote
Old 04-30-2012, 12:34 AM
Crobbins Crobbins is offline
Junior Member
Join Date: Jun 2011
Posts: 13

Your DD is adorable. I responded in the other thread but wanted to
Answer here as well... Propranolol has been around for A long time... It was used in babies for cardiac issues... The usage for Hemangionmas is only pretty recent. when we started propranolol we had a 6 hour stay in the hospital to monitor her blood sugar etc... But it had never been an issue. Good luck!!
Reply With Quote

Thread Tools
Display Modes

Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

vB code is On
Smilies are On
[IMG] code is On
HTML code is Off
Forum Jump