PWS on right check, neck, behind ear - Vascular Birthmarks Foundation Forum
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Old 03-16-2014, 09:41 PM
megalyn89 megalyn89 is offline
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Join Date: Dec 2010
Posts: 4
Unhappy PWS on right check, neck, behind ear

First off, let me say that I am not looking for a pity party. I don't feel like anyone understands, so this is my way to maybe finally find someone who gets it. I am 25, and I have had what I consider a rough life. As a child, people constantly tried to wipe the "lipstick" off of my face because my PWS is in the shape of a kiss. In middle school I was teased, because my birthmark extends from not only my right cheek but back behind my ear and down my jaw line to my neck, I was called hickey face, and although it is not a horrible nickname, I suffered immensely. Maybe it wouldn't have been
So bad if my home life had been any better.
My mother was physically and mentally abusive, I lived with my elderly grandma
And was dirt poor. I was the perfect target for every bully. I feel like that is where my problems began. I've always been a good person and great kid. Stayed out of trouble, kept to myself, did as I was told. I don't drink and I don't smoke or do drugs. But it feels like no matter how good I try to be, it doesn't make up for how awful I feel about myself. The hickey thing went on into highschool. I grew my hair out long and hid behind it. Girls called me a slut, even though I didn't even talk to boys. My hair made me feel better. Then my mom, I was back living with her for highschool,
Chopped my hair off and I was left with this feeling of doom, and I wanted to die.
She thought I was being so stupid for being so upset, but she doesn't have to live in fear and hiding herself from others. Her and my sister are beautiful. So even now that I use makeup, I always feel like people are staring through it or wondering why I have so much makeup on, or why I don't want to go to the pool or beach or anywhere my makeup might come off. I'm scared no one will ever love me if they find out, so how could I be married to someone. I'm scared that I don't deserve someone better than the POS guy I'm with now. I'm scared that its going to get harder to hide. I just want to be normal.
To feel like I'm beautiful, to feel like I'm worth it. Every day I find more things wrong and I feel like I can't get passed it. I still live with emotional abuse, I still live with self hate. When does it ever get better? I cry everyday, I spend hours getting ready, and still feel like its not good enough. Does anyone else feel this way?
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Old 03-19-2014, 12:40 AM
kaykay kaykay is offline
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Join Date: May 2006
Posts: 233

i wanna say it gets better but thats up to you. I can honestly tell you i don't think you are alone feeling that way. I have my good days and i have my bad days but i live for the good days.

i've said it on another post recently, for me personally make up seems like too much pressure. to me it feels like hiding a criminal past i don't want people to find out. its tough out there i know. i've thrown myself out for the entire world with my fb blog now and i'm just rolling with it taking it as it comes one day at a time. Doesn't mean i don't understand why people use make up, its a personal choice.

i would recommend some consoling. your childhood trama, and thats what it is, doesn't help with your own feelings about your birthmark. you really did not get the support you really needed as a child concerning your birthmark. what you posted is pretty heavy. no this is not a pity party

i think as i have gotten older i am not so worried about being normal, i'm weird so thats pretty much ruled out anyway. i think i am more content now also. less drama i have in my life the better. I have a large birthmark, its there for all to see, nothing i can do and i am certainly not gonna waste energy on ignorant asses who cannot accept me.

thank you for your honesty
my page

facebook deleted my first page for unknown reasons :mad sorry
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Old 08-02-2014, 06:27 AM
Cissy Cissy is offline
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Join Date: Aug 2014
Posts: 3

Dear Megalyn,

Can I start by giving you a big hug. I'm sorry, it has been so hard for you. I hope things get better for you and you can leave all that behind.

Most of my Venous Malformation was inside my head. So even though people couldn't see it, I became slow, very forgetful, got lost continually and had trouble keeping up with conversations. People teased me about all of these things. It was very frustrating, because I couldn't help it.

Unfortunately, it is normal for people to stare and it is normal for people to be mean. You can't control people but you may be able to control how it effects you.

Have you heard of an Australian comedian, Adam Hills. He was born without a leg and did a shows called, "Footloose" and "The Last Leg". When I feel down I like to watch him own his disability.

I like to watch him and think, if he own it. So can I.

I hope your life gets better for you.

Good luck and all the best,

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