Facial AVM help in France - Vascular Birthmarks Foundation Forum
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Old 08-22-2014, 10:28 AM
marcieroche marcieroche is offline
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Join Date: Aug 2014
Posts: 1
Default Facial AVM help in France

Hi All,
Looking for help for my niece living in France. She has a facial AVM (upper lip and cheek). So far embolisms and scleroses, but still quite prominent. I have obtained a consult from Boston Children's recommending continued embolisms and scleroses, to see a doctor in Belgium (can't recall the name), but not much else in terms of assistance and advise. We are trying to convince her parents to come to NYC to see Waner/Berenstein and maybe Yakes in Colorado. If not, does anyone have experience with a premier doctor in France?
Thanks for your help and recommendations!
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Old 08-23-2014, 03:02 AM
missy missy is offline
Join Date: Apr 2006
Posts: 1,782

Hi and welcome!

If you haven't already, get in touch with Dr. Tombris via http://birthmark.org/experts.php and ask him to recommend someone.

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