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Old 09-27-2004, 04:50 AM
l913 l913 is offline
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Join Date: Sep 2004
Posts: 10
Default who's the best doctor

I am 26 years old and have a pws on the left side of my face. I never knew until a short time ago that the birthmark is progreesive and can become thick. I would like to know who is the best doctor in the country concerning PWS. I live in Louisville, KY and not satisified with the dermatologists in town. Also, will continued laser therapy minimize the progression and eventual thickening, scarring, blebs of the birthmark? I would appreciate any response. I'm really quite depressed at learning this. In 26 years not one doctor mentioned this to me or my parents. Thanks.
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Old 09-27-2004, 06:13 AM
nickbar nickbar is offline
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Location: Pacific Northwest
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Default Re:who's the best doctor

I would recommend contacting Dr. Hochman in SC. Yes, laser is your best weapon against cobbling, thickening. Dr. Hochman is awesome. Dr. Hochman was trained by Dr. Waner.

Dr. Marcelo Hochman (VBF)
Facial Surgery Center
2095 Henry Tecklenburg Dr.
Suite 316 W
P.O. Box 80789
Charleston, SC 29414
Surgeon: treats all hemangiomas and vascular tumors and lesions
See Before and After Photos from this physician

Corinne Barinaga
VBF Director of Family Services
vbfadvocate @ live. com (no spaces)
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Old 09-27-2004, 07:26 AM
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Default Re:who's the best doctor

Hi. My son is currently being treated by Dr. Hochman for his PWS. He is really great. My son has laser treatments very 6 weeks (he is under GA). I want the PWS treated for the medical reasons (thickening, cobblestoning, bleebs, etc.) the fading is a plus in my book.
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Old 09-27-2004, 02:57 PM
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Default Re:who's the best doctor

Hi. I have heard wonderful things about Dr. Hochman.
My daughter sees Dr Geronemus in New York. He is at the laser and skin surgery center. He is amazing. What he has accomplished for my daughter's pws is unbelievable. I know that NY is far from you but look at his website and also see the before and after pictures.
There are a few Doctor's that I am aware of that are considered Vascular Abnormality Specialists and that I have heard positive feedback about. Dr Geronemus, Dr Waner, Dr. Nelson and Dr Hochman. There are a few more but I am only mentioning the Doctors that I am familiar with.
This is a website you can look at
Good luck,Elena
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Old 09-27-2004, 04:47 PM
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swsc swsc is offline
Join Date: Feb 2004
Posts: 81
Default Re:who's the best doctor

I have a grandson with SWS/PWS. We live very close to you in Lexington. Have you contacted Dr. Henry Vasconez at UK Med Center?

If you would like to talk, please email me at: swsmailbox@excite.com

The other doctors mentioned in this thread are all excellent choices.

Hope to hear from you soon.

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