Glen Ethington will celebrate his 23rd birthday on May 17!
The month of May also includes celebrations for the annual VBF International Month of Awareness and the VBF International Day of Awareness on May 15.
Glen was born with a facial port wine birthmark, and was diagnosed shortly thereafter with Sturge-Weber syndrome (SWS). The list of possible related SWS symptoms is a long one – and can include glaucoma, seizures, learning disabilities, brain abnormalities,and teeth and gum issues – just to name a few. Each case can be different, with varying instances and degrees of symptoms and severity.
Despite the issues and challenges related to SWS, Glen is leading a full and independent life. He has been a volunteer for VBF, and even had a newsletter/support group for kids with vascular birthmarks called “Glen’s Gang”.
Please help me honor Glen and others living with SWS and vascular birthmarks. No donation is too small (or too large). I ask only that you give what you can afford. It will be greatly appreciated, and I can guarantee your donation will be put to good use to best serve individuals and families, like Glen’s, living with vascular birthmarks.
Thank you, and thanks to the VBF for all they do, for all of us.