Hadlee Hudson is my beautiful daughter who was born in August of 2012. She was born with a Port Wine Stain on her left eye, up to her hairline. She as overcome many obstacles, laser treatments, tests,and treatments in her life and will keep doing so in the future.
As her parents through the years we have heard comments from strangers, and even family members about her birthmark. Some are sweet and heartfelt, some are hateful and accusing, and others are well meaning and hurtful. We have made several decisions that we stick by and are happy with after time spent researching all we could on how to make things easy for Hadlee as she grows. We are proud of the choices we have made and how well Hadlee has made it through.
In order to help others born with or who have a child with a vascular birthmark not to be judged, pressured, or accused in their choices we are raising awareness in Hadlee's name.
I started the page "Hadlee's Halo" after a poem I wrote 1 week after she was born. It was the hardest week of my life. Kyle and I were scared and confused. We were given inaccurate information by the pediatrician in the hospital about PWS and in that first week we were told she could develop SWS or even go blind. We were trained on how to handle seizures and sat through hours of tests and x-rays with our newborn baby. On top of that were the sneers and hateful remarks of strangers who wanted to ooooo and ahhh at the brand new baby but saw a mark that confused and angered them. There were the well-intentioned family and friends who encouraged us to leave her be, but we couldn't. Hadlee needs laser treatments because of the placement of her PWS and the side effects it can cause if left untreated.
Our goal for Hadlee's Give2VBF page per year is $500. We chose this amount because $500 is what it costs for the Vascular Birthmarks Foundation to sponsor a family to attend the Annual VBF Conference. Here families get help with insurance issues, diagnosis, treatment options, make-up tips, psychosocial support, and FREE consultations with the best doctors in the world. We just registered to go FOR THE FIRST TIME this year 2016. We need a waiver in order to attend. The VBF has given us that option and we are returning the favor by attempting to raise enough money every year to send 1 family to this conference who otherwise couldn't go (like we wouldn't have been able to this year).
Please consider donating to this cause and help other children like Hadlee.