The Vascular Birthmarks Foundation Dr. Linda Rozell-Shannon, PhD President and Founder

Dear VBF Family,

This is Dr Linda, PhD of the VBF. I want you to know that VBF is working closely with our network to keep you updated on COVID-19 (Novel Coronavirus)  and how it may affect those with vascular birthmarks, anomalies and related syndromes.

We are following developments closely, and all resources will be archived on this page so that you can stay informed.

If you do not find the answer to your question(s) concerning COVID-19 and a vascular birthmark, anomaly and/or related syndrome, please email me at: vbfpresident@gmail.com.  I will work with our VBF medical experts to respond to your questions and/or concerns.

Our goal is to make sure our network has all the answers they need to make the best decisions regarding their health and safety during these uncertain times. Know that VBF is here for you and your family.  We will get through this together.

Sincerely,

Dr. Linda, PhD

RESOURCES

Dr. Linda, Phd, President and Founder of the VBF  interviews Dr. Milton Waner, world renown vascular birthmarks, anomalies and related syndrome expert regarding COVID-19

  • COVID-19 Q&A

    Compiled by: Patient Advocacy Organizations
    March 16, 2020

Several patient advocacy organizations, in addition to VBF, and initiated by Mellenee Finger of the K-T Support Group, have compiled a list of questions that have been asked, or anticipated to be asked, by our affected families concerning COVID-19.

Dr. Denise Adams of the Boston Children’s Hospital, a world renown expert in vascular birthmarks, anomalies and/or related syndromes has prepared responses to these questions.

First and foremost, we must all follow the CDC and WHO guidelines concerning COVID-19. Also follow your state or country recommendations.

Thank you to the Patient Advocacy Organizations for working together for our affected families, on this joint effort:

Mellenee Finger – K-T Support
Dana Wolinsky – Project FAVA
Kristen Davis – Cloves Syndrome Community
Jack Kelly – LGD Alliance
Karla Hall – NOVA
Dr Linda Rozell-Shannon – VBF

  • COVID-19 Update on VBF Annual Conference / Clinic

    Provided by VBF by email to registered conference attendees
    March 13, 2020

I hope you are as excited as I am about our up-and-coming Annual Conference in New York City. As of today, 40 individuals and families are registered, and our 2020 Annual Conference & Clinic is scheduled to take place, as planned, on September 26, 2020 in New York, New York. We are going to have great presentations by world renown experts and many specials, such as free laser and free dental/orthodontic exams.

I want you to know that VBF is taking all necessary precautions to ensure the health and safety of attendees in light of concerns about COVID-19, commonly known as the coronavirus. We are following recommendations from the NYS Department of Health, Centers for Disease Control, US Department of Health and Human Services and the World Health Organization regarding recommendations for large gatherings, closely monitoring developments and staying abreast of updates.

As of today, we are scheduled to proceed as planned for our September conference, but will keep you posted if anything changes. We want to assure anyone planning to attend the VBF Conference that their health, safety, and security is our top priority.

Here’s how we are preparing:

  • Monitoring all guidance and recommended safety measures issued.
  • Following the WHO’s recently released Key Planning Recommendations for Mass Gatherings in the Context of the current COVID-19 Outbreak.
  • Planning to follow all recommendations and protocols for heightened cleanliness at event facilities, including increasing the number of hand sanitizing stations located throughout the facility.
  • Actively encouraging attendees to take common-sense precautions and follow safety guidelines to prevent the spread of illness.

VBF is taking COVID-19 very seriously and is fully engaged and prepared to host a successful Meeting in New York City. We encourage attendees to monitor the WHO’s Travel Advice as they consider their travel arrangements to the VBF Meeting, as well as its recommendations for protecting themselves from infection.

We are prepared to respond if something in NYC or at the Lenox Hill Hospital interferes with our plans for the conference. No one can predict that far ahead but we are encouraged that the outbreaks in China are decreasing. We would all like to get back to our “pre” virus lives.

ADDITIONAL RESOURCES