The Vascular Birthmarks Foundation (VBF) is proud to initiate the first comprehensive vascular birthmarks, anomalies, and related syndromes COVID-19 Impact Study.
The VBF COVID-19 Impact Study was created by Dr. Linda Rozell-Shannon, Ph.D., and Duke University senior and incoming Icahn School of Medicine at Mount Sinai student Jasmine Leahy. Jasmine is completing her summer internship project with Duke; this study serves to fulfill her internship requirements. Dr. Gregory Levitin of the Vascular Birthmarks Center of New York and VBF Expert served as Medical Editor of the project.
The study is broken down into demographics, medical effects, and psychosocial impact. It takes less than 5 minutes to complete. The deadline for completion is July 31.
This study seeks to determine if COVID-19 has had an impact on a vascular birthmark, anomaly, or related syndrome and, if so, whether the impact was negative or positive.
The survey is for both adults with vascular birthmarks and caregivers/loved ones of people with one.
The results of this study will be published and shared through all VBF outlets.
For more information, contact Dr. Linda at firstname.lastname@example.org
This is Dr. Linda, Ph.D. of the VBF. I want you to know that VBF is working closely with our network to keep you updated on COVID-19 (Novel Coronavirus) and how it may affect those with vascular birthmarks, anomalies, and related syndromes.
We are following developments closely, and all resources will be archived on this page so that you can stay informed.
If you do not find the answer to your question(s) concerning COVID-19 and a vascular birthmark, anomaly, and/or related syndrome, please email me at email@example.com. I will work with our VBF medical experts to respond to your questions and/or concerns.
Our goal is to make sure our network has all the answers they need to make the best decisions regarding their health and safety during these uncertain times. Know that VBF is here for you and your family. We will get through this together.
Added April 14, 2020
Q&A on COVID-19 with European Experts
Compiled by: Dr. Milton Waner & Dr. Linda Rozell-Shannon
March 23, 2020
Dr. Linda, Phd, President and Founder of the VBF interviews Dr. Milton Waner, world renown vascular birthmarks, anomalies and related syndrome expert regarding COVID-19
Compiled by: Patient Advocacy Organizations
March 16, 2020
Several patient advocacy organizations, in addition to VBF, and initiated by Mellenee Finger of the K-T Support Group, have compiled a list of questions that have been asked, or anticipated to be asked, by our affected families concerning COVID-19.
Dr. Denise Adams of the Boston Children’s Hospital, a world renown expert in vascular birthmarks, anomalies and/or related syndromes has prepared responses to these questions.
First and foremost, we must all follow the CDC and WHO guidelines concerning COVID-19. Also follow your state or country recommendations.
Thank you to the Patient Advocacy Organizations for working together for our affected families, on this joint effort:
Mellenee Finger – K-T Support
Dana Wolinsky – Project FAVA
Kristen Davis – Cloves Syndrome Community
Jack Kelly – LGD Alliance
Karla Hall – NOVA
Dr Linda Rozell-Shannon – VBF
Provided by VBF by email to registered conference attendees
March 13, 2020
We want to assure anyone planning to attend the VBF Conference that their health, safety, and security remains our top priority. We are following recommendations from the NYS Department of Health, Centers for Disease Control, US Department of Health and Human Services and the World Health Organization regarding recommendations for large gatherings, closely monitoring developments and staying abreast of updates.
VBF is taking COVID-19 very seriously and is fully engaged and prepared to host a successful meeting in New York City. We encourage attendees to monitor the WHO’s Travel Advice as they consider their travel arrangements, as well as its recommendations for protecting themselves from infection. We remain prepared to respond if something in NYC or at the Lenox Hill Hospital interferes with our plans for the conference this December.
VBF is taking all necessary precautions to ensure the health and safety of attendees in light of concerns about COVID-19, commonly known as the coronavirus. We are following recommendations from the NYS Department of Health, Centers for Disease Control, US Department of Health and Human Services and the World Health Organization regarding recommendations for large gatherings, closely monitoring developments and staying abreast of updates.
Here’s how we are preparing:
We are prepared to respond if something in NYC interferes with our plans for the conference, and are committed to providing our conference services this year no matter what life holds for us in December.