The Vascular Birthmarks Foundation maintains Facebook pages and groups where users are welcome to get information, support, and additional resources:
The Vascular Birthmarks Foundation
https://www.facebook.com/VascularBirthmarksFoundation/?fref=ts
Hemangioma Parents Group
https://www.facebook.com/groups/3754730459/
Hemangioma Awareness
https://www.facebook.com/groups/354995278960/
PHACE Syndrome Community
https://www.facebook.com/groups/phacesyndromecommunity/
PHACE Syndrome Community Friends
https://www.facebook.com/PhaceSyndromeCommunityFriends/?fref=ts
The Vascular Birthmarks Foundation invites world-renowned experts to Facebook Live sessions where they take questions in real time from users all over the world. Join us for next one and submit your questions. Below, find older sessions for discussions on hemangiomas:
Dr. Linda and VBF Expert Dr. Milton Waner Topic: Treating Hemangiomas and Vascular MalformationsRecorded February 27, 2018 Dr. Linda Rozell-Shannon and Dr. Milton Waner Topic: Hemangiomas: when to treat, and when not to treat
Recorded February 13, 2017 Dr. Linda Rozell-Shannon and Dr. David Darrow Topic: Treating gums and teeth in port wine stain patients; and general hemangioma treatment issues
Recorded October 6, 2017