The Vascular Birthmarks Foundation Dr. Linda Rozell-Shannon, PhD President and Founder

Christine at 18 months.

Christine at 22 months, 3 months after surgery.

Christine in 2009, aged 15.

One in ten children are born with a vascular birthmark, or 400,000, each year in the United States (based on the 2003 census). Of these infants, 1 in 10, or 40,000 are born with a vascular birthmark that will require the opinion of a medical specialist. There are two categories of vascular birthmarks: hemangiomas, which are the most common tumor of infancy, and vascular malformations. These two categories, while related, are very different. It is very important to know the difference because the treatment is different depending on the lesion type.

Traditional medical protocol in years past was to allow these potentially disfiguring and dangerous lesions to grow and “wait” for regression or involution to occur. New data indicates that most of these lesions do not regress to a cosmetically acceptable appearance, and will, therefore, require some form of corrective surgery. As a result, there is a concerted effort on the part of several prominent physicians and research specialists to change the old “benign neglect” protocol to require more aggressive early intervention. Additionally, almost all benign vascular lesions have been called “hemangiomas.” However, many are actually vascular malformations. It is important to have an accurate diagnosis since hemangiomas will regress but vascular malformations will continue to grow. This web site is dedicated to provide the most accurate and up to date information on the proper diagnosis and treatment of hemangiomas and other vascular birthmarks. This information is not only important for parents, it is critical for physicians and other health care providers.

Dr. Linda Rozell Shannon is the President and Founder of the Vascular Birthmarks Foundation. She has her Phd in Education, her Masters of Science degree in Health Education and has been a freelance writer and analyst for over 25 years. In 1994, after her daughter, Christine Mary Shannon, was diagnosed with a hemangioma in 1994, Linda began researching and writing information on vascular birthmarks. In 1995, Linda learned about Dr. Milton Waner, and his work at Arkansas Children’s Hospital. After he successfully removed her daughter’s hemangioma in one 3 hour out- patient surgical procedure, she teamed up with Dr. Warner, Associate Professor of Otolaryngology, Head and Neck Surgery at the University of Arkansas Medical School (currently (2005) at the Birthmark Institute at the Beth Israel Hospital in NYC) to write the one and only book for parents on birthmarks. Today, Dr. Waner is an internationally recognized authority on the diagnosis and treatment of hemangiomas and vascular malformations. He has successfully treated thousands of child and adults with vascular birthmarks. Since its inception in 1994, VBF has successfully networked thousands of children and adults into treatment, sponsored significant research, educated physicians and affected family members about the diagnosis and treatment of vascular birthmarks and has established chapters all over the world.

Presentation with VBF’s History (Power Point)