The Vascular Birthmarks Foundation Dr. Linda Rozell-Shannon, PhD President and Founder

Weber Memorial Travel Fund Awardee: Rachael Bender For Her Daughter Dylan!

 

GENERAL INFORMATION ABOUT THE TRAVEL FUND:

Brian C. Weber Memorial Travel Fund – established by the parents of Brian Weber to honor his courageous life. We aim to enable sufferers to actively seek out experts who can help with early diagnosis and better management of their particular condition, and guide them through to a productive and fulfilling life. Awards of $500 each are available for those seeking information about KTS. Learn more at https://birthmark.org/travel-assistance-for-kts/  The information has also been included within this post below.

 

A NOTE FROM RACHAEL BENDER:

“We want to personally thank the Weber Memorial Fund and family for their generous donation to help with our travel expenses to the Vascular Birthmark Conference and clinic this past weekend in Irvine, California. Our daughter was born with a large PWS on her trunk and we were very concerned she had KTS. After many doctor visits in our hometown area of Grand Rapids, Michigan we couldn’t get an accurate diagnosis of what was causing her leg size difference. We were able to meet with the KTS team of doctors at the clinic and come up with a plan for my daughter. They put a lot of anxiety and unanswered questions to rest. We are so happy and feel very blessed that we got the opportunity to be apart of this. Without the Weber Fund, we wouldn’t have been able to make this possible. Thank you for all that you do for families concerned with KTS we are forever grateful.” 

VBF thanks Brian’s family, friends, and everyone involved with supporting families seeking a diagnosis and/or treatment of Klippel-Trenaunay Syndrome (KTS). Thanks to your efforts Rachael & Dylan were able to attend the 2019 Annual VBF Conference & clinic where they received a consultation with a team of KTS specialists!

A MESSAGE FROM VBF:

VBF thanks Brian’s family, friends, and everyone involved with supporting families seeking a diagnosis and/or treatment of Klippel-Trenaunay Syndrome (KTS). Thanks to your efforts Rachael & Dylan were able to attend the 2019 Annual VBF Conference & clinic where they received a consultation with a team of KTS specialists!

BRIAN C. WEBER MEMORIAL TRAVEL FUND INFO:

Brian C. Weber Memorial Travel Fund for families affected by KTS

The Brian C. Weber Memorial Travel Fund was established by the parents of Brian Weber to honor his courageous life. Brian died at the age of 38 on August 11, 2014. Brian lived his entire life with the complications associated with Klippel-Trenaunay and Parks-Weber Syndrome (KTS), a debilitating vascular condition that affects limbs, tissue and bone. For many years, Brian remained undiagnosed and suffered complications from inappropriate interventions. While accurate information about KTS is still not widely disseminated, there is more available everyday.

In honor of Brian’s life, a fund supported by Brian’s family and friends will be administered through the Vascular Birthmarks Foundation to assist families affected by KTS for travel expenses related to the diagnosis and/or treatment of KTS. We aim to enable sufferers to actively seek out experts who can help with early diagnosis and better management of their particular condition, and guide them through to a productive and fulfilling life.

Each award is limited to $500 per family and must be used towards travel to/from a provider or facility seeking a possible diagnosis and/or treatment for Klippel-Trenaunay Syndrome.

To apply for travel assistance from this fund, please click to download the application.

Review of a completed application generally takes six to eight weeks. A submitted application is not a guarantee of receiving financial assistance. Funds are limited and based on eligibility and availability. All information will be held strictly confidential. We are unable to process incomplete applications.

To request or return an application, please contact:
Vascular Birthmarks Foundation
ATTN: Weber Memorial Travel Fund
PO Box 106, Latham, NY, 12110

You may also CONTACT US or call Board Member Carla Mannix at 610-301-4522 if you have any questions.

If you would like to donate to this travel assistance fund, please donate here. Be sure to designate it to the Brian Weber Memorial Travel Fund. Your contributions are fully tax-deductible. Thank you for helping families with KTS receive the care they deserve.

The Vascular Birthmarks Foundation is a registered 501(c)(3) non-profit organization. Federal Tax ID: 16-1515227.

 

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