Dr. Linda Rozell-Shannon, PhD President and Founder
We continue to collect information for parents that we hope will give you guidance and support in your journey. We have provided this list of resources below; visit our Parent List to contact parents who have volunteered for questions and support. Looking to contact someone from VBF about treatment options in your area? Contact us!
Memorable Messages Parents of Children with Vascular Birthmarks Receive from Others: Implications for Stigma and Identity (pdf)
Anna M. Kerr, Charee M. Thompson & Valerie Rubinsky (2019): Memorable Messages Parents of Children with Vascular Birthmarks Receive from Others: Implications for Stigma and Identity, Health Communication.
How to Appeal an Insurance Denial or Request Out-of-Network Treatment (pdf)
Example Letter for Insurance Appeals
Ulcer Care and Treatment (pdf)
A Parent’s Guide to Oral Steroids (pdf) – Overview of the long and short term effects of oral steroids.
Treatment for Port Wine Stain – A Guide for Parents and Children
Psychosocial and Emotional Issues for Individuals with a Port Wine Stain
Dr. Linda’s Facebook Live Sessions with VBF Medical Experts
VBF’s Facebook Live videos allow families from around the world to have their questions answered LIVE by Dr. Linda and a VBF medical expert. Catch up on Facebook Live Sessions you missed or tune in to an upcoming session with Dr. Linda and a VBF medical expert to have your questions answered in real-time.
By Dr. Linda Rozell-Shannon, VBF President & Founder & VBF Medical Experts