Dr. Linda Rozell-Shannon, PhD President and Founder
Information for Parents
We continue to collect information for parents that we hope will give you guidance and support in your journey. We have provided this list of resources below; visit our Parent List to contact parents who have volunteered for questions and support. Looking to contact someone from VBF about treatment options in your area? Contact us!
VBF Parent Advocacy Network– The VBF Parent Advocacy Network is a series of 60-90 minute monthly facilitated virtual sessions established to provide psychosocial and community support to families affected by a vascular birthmark, anomaly, and/or related syndrome and to explore affected family’s needs. Hosted by Corinne Barinaga, Chair of the VBF Board of Directors and Director of Patient Advocacy, this series explores a different topic each month beyond diagnosis and treatment options. Featuring activities, special guest co-hosts, and tools to equip you in this birthmark journey, attendees are encourage to turn on their cameras and microphones and participate in the conversation.
VBF Vascular Birthmarks Brochure – A comprehensive brochure describing all vascular birthmark types, syndromes and treatment options. To print, click here (you will need the Acrobat Reader to view and print this document).
Anna M. Kerr, Charee M. Thompson & Valerie Rubinsky (2019): Memorable Messages Parents of Children with Vascular Birthmarks Receive from Others: Implications for Stigma and Identity, Health Communication.
VBF’s Facebook Live videos allow families from around the world to have their questions answered LIVE by Dr. Linda and a VBF medical expert. Catch up on Facebook Live Sessions you missed or tune in to an upcoming session with Dr. Linda and a VBF medical expert to have your questions answered in real-time.
By Dr. Linda Rozell-Shannon, VBF President & Founder & VBF Medical Experts
This list in no way is to be construed as containing the ONLY physicians who treat vascular birthmarks. There are many other physicians who are qualified and have great expertise in this area. This list contains some physicians who have become a part of our resource list. We briefly mention what some of these physicians treat if we have that information under their name and address. If you are a physician or if you know of a physician who should be added to our resource list, please use our Physician Enrollment Form.